From cbennet2 at andrew.cmu.edu Thu Apr 1 09:58:52 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 1 Apr 2021 13:58:52 +0000 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Hi Everyone, Thank you for all of the contributions to this important discussion. I am reminded that we will make mistakes. While addressing them is imperative to maintaining a safer and accountable community, we can also do more to proactively prevent harm and keep our attendees who experience disabilities and are otherwise minoritized from the burden of explaining the impact of such harm and educating us. Sara, I am sorry that the readings caused harm and that it has led you to share personal information and unnecessarily educate us. I am taking action by learning how to better facilitate a safer space, spend more time on facilitating this group which has slipped from my time commitments lately, and pass these practices onto successive facilitators. Franky, I appreciate your response and I maintain hope that we can continue to grow during the reading group today. As a first step, I ask that we all commit to this: readings should never be chosen by one person alone. As facilitator this semester, I would like discussion leads to send readings to me so we can discuss their appropriateness and any content warnings that may need to accompany their assignment. I am ever learning but a couple of takeaways I can offer right now: *** The first takeaway contains discussions of medical rationing, in the next paragraph. *** First, while it is important to explore a variety of perspectives, ableist viewpoints on technology and disability being some, the materials that scaffold these perspectives must be chosen with intent commensurate with the potential harm they can cause. Assessing this potential requires us to first pause. Assigning readings without spending time with them is generally not a good idea. I am not saying anyone has done this; I am offering it as a general best practice. More specifically, if you?d like for us to explore topics as a group that cause egregious harm, you can choose readings that raise awareness of these important topics from a viewpoint that ultimately affirms people with disabilities are legitimate humans who do not need to be changed. While we may disagree on many things, the legitimacy and dignity of people with disabilities is a baseline that we all agree with. If that statement does not resonate with you or raises questions, I request that you reach out to me and we can discuss things you might do to work through your questions and concerns. Back to negotiating difficult topics, as a concrete example, I offer Alice Wong?s leadership on medical rationing during the COVID-19 pandemic. To discuss this topic, we could choose a myriad of articles written by people from many backgrounds an lived experiences. But negotiating such a topic with Alice Wong let?s us do so with a backdrop of disability affirmation. Her writing and commentating via her podcast regularly affirms the legitimacy and dignity of people with disabilities. Coming to this conclusion requires examining her other work and understanding her position to it. I know this is not always possible, but we can often learn more about the context and authors of our readings with effort. Choosing the above linked podcast also allows us to explore the topic of medical rationing with a perspective of someone who is arguably among those most impacted by it, being that she is a disabled Asian-American woman whose medical diagnoses are among those that might be classified as less deserving of the highest quality medical care. Relating this back to this week?s discussion, we could explore ableist disability erasure and techno solutionist approaches toward these ends by examining the texts by Jillian Weiss and Laura Forlano, as they directly commentate on the power medical and tech industries have on their bodies. The 3rd article could be mentioned in passing and with warning but is not needed. Franky has already recognized this in her follow-up message. Second, we are learning that language matters but there is seldom agreement on what language is most respectful. With that in mind, what I can offer as hopefully concrete and useful advice is this. As we read more disabled authors, we will read language they have claimed to refer to their own lived experience. This is their right and a form of resistance as this language has been/is still used to dehumanize them and harm them. Again, we should pause before we use language. In reflecting where we have read it, we can make better decisions about what language is appropriate for us to use given our position to the topic. While we have spent time this semester discussing the inappropriateness of taking up language nondisabled people have assigned but which disabled people largely find problematic (I think of phrases like ?special needs?), we should also recognize when a person with disabilities is reclaiming a term that would not be appropriate for nondisabled people, or even sometimes people with disabilities who do not have that specific experience, to use. To offer my own thought process as an example (which I am open for correction), as a visibly disabled person who uses both low and high tech which is regularly scrutinized and manipulated without my consent, I do sometimes use words like ?crip? to describe myself and my similarly-disabled friends. I do not however, use words to that have been used to degrade people who have those experiences. Even though I am disabled, I am not harmed by the mental health industrial complex in ways that have systematically harmed me. While we can reflect on and adapt our own language use, being a better ally and asking others to change their language can be tricky since we don?t want to force people to disclose their personal information. For example, in writing the previous example, I realize that we have been working at home for a year and some people join us who aren?t even in Pittsburgh. It is reasonable that someone could interpret my use of the word ?crip? as inappropriate as it is quite likely they have never seen my technologies or disabilities in action. If you find that someone is using language inappropriately, you might remind the group of appropriate language practices more generally and discuss with a confident if and how you can directly address their potentially inappropriate language. I am happy to be this person in regard to unpacking language use during the reading group. Back to this week?s discussion, words like ?cyborg? and ?crip? are not words that nondisabled people should use. If you want to discuss more specifics about language, I am open to working with you to find the education necessary to traverse your questions. I will reserve the last part of reading group to discuss how we will move forward with care and to clarify the above takeaways. I look forward to learning with you later today. Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar From: Accessibility-lunch On Behalf Of Samantha Reig Sent: Wednesday, March 31, 2021 7:57 PM To: Sara Kingsley Cc: Franchesca Spektor ; accessibility-lunch at lists.andrew.cmu.edu Subject: Re: [Access Lunch] Reading for this Week Sara and I were discussing this a bit offline, and she shared with me a piece that's pertinent to this conversation. I'm passing it along with her permission: https://assistivetechjustice.medium.com/ableism-and-assistive-technology-926f4097a976 Best, Sam On Wed, Mar 31, 2021 at 1:28 PM Sara Kingsley > wrote: Post-note. I should have emphasized that the model regarding artificial pancreas decisions is not quite one of choice due to structural racism. Black and Hispanic people living with T1D do not have equal access to technology or medical care due to the structural racism of the United States. References: [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4533245/ [2] https://www.healio.com/news/endocrinology/20201231/black-young-adults-with-type-1-diabetes-less-likely-to-use-cgm-insulin-pump On Wed, Mar 31, 2021 at 1:15 PM Sara Kingsley > wrote: Franky, I really appreciate the time and care you've clearly put into crafting this note. I appreciate the additional context about Wiese and Forlano. At a future date, if you still have interest, I would be happy to share what I know of our use of artificial pancreases. It's a complicated history that is rapidly evolving, and one that is not a part of the techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very anarchic/autonomous crowd in terms of perspectives). Only until recently, many people were not permitted to use an artificial pancreas unless the management of their type 1 diabetes was at a state that it was considered the medicine or tool of second to last resort. With advances in technology, form factors, and machine learning (to my own surprise AI does sometimes save lives, though it has killed us too), and how those developments have interacted with major policy changes (Affordable Care Act) and pricing/economics, the model of care has changed to one of choice, eg, use the tech that works best for you. Our community continues to very hotly debate the use of language. For example, a lot of us are trained by medical professionals from a very early age to use person-first language. This is partly because studies indicate that young children thrive better with T1D when their personhood is centered (happy to provide readings about this upon request). We are also, some of us, subjected to harassment about our assistive technology. For example, I lost my high school education to bullying, violence against my artificial organ (having it ripped out), and being called similar terms as cyborg. Not all of us, thankfully, have had those experiences, but we are statistically or systematically excluded from educational institutions (linked readings are below). While a fair number of us do refer to ourselves by a range of terms, as you mentioned, it is not appropriate to refer to our demographic that way or any individual member of our community. These are our organs, we do not have the privilege to wear them on the inside anymore because the internal ones "died" (they still work for other things such as digestion but some of us say our pancreas is dead). I really appreciate you and this note. I've not really had a critical mass of T1Ds in any space I've had to survive. I'd imagine I'm not the only one here, but not sure what their preferences are. Either way, it really takes allies and a community speaking up and working with us to make sure we can exist everywhere, in any space, and that our lives are equal in economic opportunity and dignity. Article about school exclusion: https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html Department of Justice on the exclusion of Type 1 diabetics in school: https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes Here is article about ableist language, though we could perhaps benefit from creating comprehensive HCI Guidelines, I defer to the experts in the crowd on that: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html Thank you, Sara On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor > wrote: Sara, thank you for sharing this important perspective. I apologize that I did not use the term ?cyborg? with the care that it necessitates when introducing readings that take up controversial language. To respond to your message, I did some research on the ways ?cyborg? has been used to describe people with disabilities. As you mentioned, the term has been used to reduce people with disabilities into the ways they are enabled by technology. These reductions, along with the term?s propensity in science fiction, feed stereotypes that technology may ?fix? disability and that people with disabilities are subhuman, in particular, lacking warmth and human complexity. For others, like me, who could use more education on the topic, here are some resources I found that nuance the potential harms and limitations of reclaiming cyborg terminology. Importantly, this discussion is complex and ongoing and some disabled activists have made clear that cyborg is not a term nondisabled people should use in reference to people with disabilities. * Cyborgs, Cripples and iCrip: Reflections on the Contribution of Haraway to Disability Studies by Donna Reeve talks about why the cyborg figure hasn't been more utilized in disability studies. * The Cyborg and the Crip chapter in Feminist, Queer, Crip by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of pure/impure, natural/unnatural, natural/technological; rather than breaking down boundaries, it buttresses them" (109). * The intro of Building the Normal Body: Disability and the Techno-makeover by Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been traditionally ableist, from Haraway to Chris Hables Gray to John Hockenberry. * The Dawn of the 'Tryborg' by Jillian Weise, where she argues only disabled people should call themselves cyborgs since only disabled people depend on integrated technology. These different essays, perspectives, and bits of lineage are so important, and I hope we can continue discussing this nuance as a group. For instance, while Jillian Wiese uses a bionic leg and strongly identifies with the term cyborg, Laura Forlano, who uses an automatic insulin pump for type 1 diabetes does not. In both of their firsthand testimony, these authors detail the labor it requires to make their assistive technology work. I recognize that Zoltan Istvan?s controversial article is a troubling counterpoint to their perspectives, as it is 1) a blatant misunderstanding of the capacity of assistive tech, and 2) an insidious ideology that has influenced policy. In pairing it with Wiese and Forlano, I was hoping to draw out this historical tension between techno-solutionism and disability rights in our Thursday discussion. I apologize for not initially characterizing the harm perpetuated by Zoltan?s ideology -- especially as it concerns the term ?cyborg.? On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley > wrote: Hi everyone, I request that we not refer to everyone living with medical assistive technology as a "cyborg." For many of us, it is extraordinarily derogatory, ableist, and those terms have been used by non-disabled people to harass and commit acts of violence against disabled people. I also ask that we consider reading about the history of diabetes technology, the broader community whose lives depend on it before engaging in a discussion of type 1 diabetes. Thank you, Sara On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor > wrote: Hi everyone, For this week's reading, we'll explore the cyborg as the supposed "pinnacle" of assistive technology. Can cyborg technology eliminate disability? Who can afford to become a cyborg? How do these questions come to influence products and policy? These first two essays discuss the frictions of cyborg embodiment, from the lived experience of disability: * "Common Cyborg" by Jillian Weise, a poet, performance artist, and activist. (I've shared this essay before but I just love it so much). * "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and design researcher. If you have time for it, this last essay is a short Vice article from several years ago, which argues that the US should invest into exoskeletons rather than accessible environments. * "In the Transhumanist Age, We Should be Repairing Disabilities, Not Sidewalks" by Zoltan Istvan, an attempted politician and president of the Transhumanist Party. I'm really looking forward to our discussion and hearing everyone's thoughts! As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Thanks so much, and see y'all soon ~ - Franky _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her Create Safe Spaces for Students, Denounce Ableist Language: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Apr 1 10:12:29 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 1 Apr 2021 14:12:29 +0000 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: <6530e51cbbb740a1b259239b9795d961@andrew.cmu.edu> Hi, I am resending the previous email with one phrase added that I left out. Hi Everyone, Thank you for all of the contributions to this important discussion. I am reminded that we will make mistakes. While addressing them is imperative to maintaining a safer and accountable community, we can also do more to proactively prevent harm and keep our attendees who experience disabilities and are otherwise minoritized from the burden of explaining the impact of such harm and educating us. Sara, I am sorry that the readings caused harm and that it has led you to share personal information and unnecessarily educate us. I am taking action by learning how to better facilitate a safer space, spend more time on facilitating this group which has slipped from my time commitments lately, and pass these practices onto successive facilitators. Franky, I appreciate your response and I maintain hope that we can continue to grow during the reading group today. As a first step, I ask that we all commit to this: readings should never be chosen by one person alone. As facilitator this semester, I would like discussion leads to send readings to me so we can discuss their appropriateness and any content warnings that may need to accompany their assignment. I am ever learning but a couple of takeaways I can offer right now: *** The first takeaway contains discussions of medical rationing, in the next paragraph. *** First, while it is important to explore a variety of perspectives, ableist viewpoints on technology and disability being some, the materials that scaffold these perspectives must be chosen with intent commensurate with the potential harm they can cause. Assessing this potential requires us to first pause. Assigning readings without spending time with them is generally not a good idea. I am not saying anyone has done this; I am offering it as a general best practice. More specifically, if you?d like for us to explore topics as a group that cause egregious harm, you can choose readings that raise awareness of these important topics from a viewpoint that ultimately affirms people with disabilities are legitimate humans who do not need to be changed. While we may disagree on many things, the legitimacy and dignity of people with disabilities is a baseline that we all agree with. If that statement does not resonate with you or raises questions, I request that you reach out to me and we can discuss things you might do to work through your questions and concerns. Back to negotiating difficult topics, as a concrete example, I offer Alice Wong?s leadership on medical rationing during the COVID-19 pandemic. To discuss this topic, we could choose a myriad of articles written by people from many backgrounds an lived experiences. But negotiating such a topic with Alice Wong let?s us do so with a backdrop of disability affirmation. Her writing and commentating via her podcast regularly affirms the legitimacy and dignity of people with disabilities. Coming to this conclusion requires examining her other work and understanding her position to it. I know this is not always possible, but we can often learn more about the context and authors of our readings with effort. Choosing the above linked podcast also allows us to explore the topic of medical rationing with a perspective of someone who is arguably among those most impacted by it, being that she is a disabled Asian-American woman whose medical diagnoses are among those that might be classified as less deserving of the highest quality medical care. Relating this back to this week?s discussion, we could explore ableist disability erasure and techno solutionist approaches toward these ends by examining the texts by Jillian Weiss and Laura Forlano, as they directly commentate on the power medical and tech industries have on their bodies. The 3rd article could be mentioned in passing and with warning but is not needed. Franky has already recognized this in her follow-up message. Second, we are learning that language matters but there is seldom agreement on what language is most respectful. With that in mind, what I can offer as hopefully concrete and useful advice is this. As we read more disabled authors, we will read language they have claimed to refer to their own lived experience. This is their right and a form of resistance as this language has been/is still used to dehumanize them and harm them. Again, we should pause before we use language. In reflecting where we have read it, we can make better decisions about what language is appropriate for us to use given our position to the topic. While we have spent time this semester discussing the inappropriateness of taking up language nondisabled people have assigned but which disabled people largely find problematic (I think of phrases like ?special needs?), we should also recognize when a person with disabilities is reclaiming a term that would not be appropriate for nondisabled people, or even sometimes people with disabilities who do not have that specific experience, to use. To offer my own thought process as an example (which I am open for correction), as a visibly disabled person who uses both low and high tech which is regularly scrutinized and manipulated without my consent, I do sometimes use words like ?crip? to describe myself and my similarly-disabled friends. I do not however, use words associated with mental health conditions that have been used to degrade people who have those experiences. Even though I am disabled, I am not harmed by the mental health industrial complex in ways that have systematically harmed me. While we can reflect on and adapt our own language use, being a better ally and asking others to change their language can be tricky since we don?t want to force people to disclose their personal information. For example, in writing the previous example, I realize that we have been working at home for a year and some people join us who aren?t even in Pittsburgh. It is reasonable that someone could interpret my use of the word ?crip? as inappropriate as it is quite likely they have never seen my technologies or disabilities in action. If you find that someone is using language inappropriately, you might remind the group of appropriate language practices more generally and discuss with a confidant if and how you can directly address their potentially inappropriate language. I am happy to be this person in regard to unpacking language use during the reading group. Back to this week?s discussion, as Sara has mentioned, words like ?cyborg? and ?crip? are not words that nondisabled people should use. If you want to discuss more specifics about language, I am open to working with you to find the education necessary to traverse your questions. I will reserve the last part of reading group to discuss how we will move forward with care and to clarify the above takeaways. I look forward to learning with you later today. Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar From: Accessibility-lunch > On Behalf Of Samantha Reig Sent: Wednesday, March 31, 2021 7:57 PM To: Sara Kingsley > Cc: Franchesca Spektor >; accessibility-lunch at lists.andrew.cmu.edu Subject: Re: [Access Lunch] Reading for this Week Sara and I were discussing this a bit offline, and she shared with me a piece that's pertinent to this conversation. I'm passing it along with her permission: https://assistivetechjustice.medium.com/ableism-and-assistive-technology-926f4097a976 Best, Sam On Wed, Mar 31, 2021 at 1:28 PM Sara Kingsley > wrote: Post-note. I should have emphasized that the model regarding artificial pancreas decisions is not quite one of choice due to structural racism. Black and Hispanic people living with T1D do not have equal access to technology or medical care due to the structural racism of the United States. References: [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4533245/ [2] https://www.healio.com/news/endocrinology/20201231/black-young-adults-with-type-1-diabetes-less-likely-to-use-cgm-insulin-pump On Wed, Mar 31, 2021 at 1:15 PM Sara Kingsley > wrote: Franky, I really appreciate the time and care you've clearly put into crafting this note. I appreciate the additional context about Wiese and Forlano. At a future date, if you still have interest, I would be happy to share what I know of our use of artificial pancreases. It's a complicated history that is rapidly evolving, and one that is not a part of the techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very anarchic/autonomous crowd in terms of perspectives). Only until recently, many people were not permitted to use an artificial pancreas unless the management of their type 1 diabetes was at a state that it was considered the medicine or tool of second to last resort. With advances in technology, form factors, and machine learning (to my own surprise AI does sometimes save lives, though it has killed us too), and how those developments have interacted with major policy changes (Affordable Care Act) and pricing/economics, the model of care has changed to one of choice, eg, use the tech that works best for you. Our community continues to very hotly debate the use of language. For example, a lot of us are trained by medical professionals from a very early age to use person-first language. This is partly because studies indicate that young children thrive better with T1D when their personhood is centered (happy to provide readings about this upon request). We are also, some of us, subjected to harassment about our assistive technology. For example, I lost my high school education to bullying, violence against my artificial organ (having it ripped out), and being called similar terms as cyborg. Not all of us, thankfully, have had those experiences, but we are statistically or systematically excluded from educational institutions (linked readings are below). While a fair number of us do refer to ourselves by a range of terms, as you mentioned, it is not appropriate to refer to our demographic that way or any individual member of our community. These are our organs, we do not have the privilege to wear them on the inside anymore because the internal ones "died" (they still work for other things such as digestion but some of us say our pancreas is dead). I really appreciate you and this note. I've not really had a critical mass of T1Ds in any space I've had to survive. I'd imagine I'm not the only one here, but not sure what their preferences are. Either way, it really takes allies and a community speaking up and working with us to make sure we can exist everywhere, in any space, and that our lives are equal in economic opportunity and dignity. Article about school exclusion: https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html Department of Justice on the exclusion of Type 1 diabetics in school: https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes Here is article about ableist language, though we could perhaps benefit from creating comprehensive HCI Guidelines, I defer to the experts in the crowd on that: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html Thank you, Sara On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor > wrote: Sara, thank you for sharing this important perspective. I apologize that I did not use the term ?cyborg? with the care that it necessitates when introducing readings that take up controversial language. To respond to your message, I did some research on the ways ?cyborg? has been used to describe people with disabilities. As you mentioned, the term has been used to reduce people with disabilities into the ways they are enabled by technology. These reductions, along with the term?s propensity in science fiction, feed stereotypes that technology may ?fix? disability and that people with disabilities are subhuman, in particular, lacking warmth and human complexity. For others, like me, who could use more education on the topic, here are some resources I found that nuance the potential harms and limitations of reclaiming cyborg terminology. Importantly, this discussion is complex and ongoing and some disabled activists have made clear that cyborg is not a term nondisabled people should use in reference to people with disabilities. * Cyborgs, Cripples and iCrip: Reflections on the Contribution of Haraway to Disability Studies by Donna Reeve talks about why the cyborg figure hasn't been more utilized in disability studies. * The Cyborg and the Crip chapter in Feminist, Queer, Crip by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of pure/impure, natural/unnatural, natural/technological; rather than breaking down boundaries, it buttresses them" (109). * The intro of Building the Normal Body: Disability and the Techno-makeover by Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been traditionally ableist, from Haraway to Chris Hables Gray to John Hockenberry. * The Dawn of the 'Tryborg' by Jillian Weise, where she argues only disabled people should call themselves cyborgs since only disabled people depend on integrated technology. These different essays, perspectives, and bits of lineage are so important, and I hope we can continue discussing this nuance as a group. For instance, while Jillian Wiese uses a bionic leg and strongly identifies with the term cyborg, Laura Forlano, who uses an automatic insulin pump for type 1 diabetes does not. In both of their firsthand testimony, these authors detail the labor it requires to make their assistive technology work. I recognize that Zoltan Istvan?s controversial article is a troubling counterpoint to their perspectives, as it is 1) a blatant misunderstanding of the capacity of assistive tech, and 2) an insidious ideology that has influenced policy. In pairing it with Wiese and Forlano, I was hoping to draw out this historical tension between techno-solutionism and disability rights in our Thursday discussion. I apologize for not initially characterizing the harm perpetuated by Zoltan?s ideology -- especially as it concerns the term ?cyborg.? On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley > wrote: Hi everyone, I request that we not refer to everyone living with medical assistive technology as a "cyborg." For many of us, it is extraordinarily derogatory, ableist, and those terms have been used by non-disabled people to harass and commit acts of violence against disabled people. I also ask that we consider reading about the history of diabetes technology, the broader community whose lives depend on it before engaging in a discussion of type 1 diabetes. Thank you, Sara On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor > wrote: Hi everyone, For this week's reading, we'll explore the cyborg as the supposed "pinnacle" of assistive technology. Can cyborg technology eliminate disability? Who can afford to become a cyborg? How do these questions come to influence products and policy? These first two essays discuss the frictions of cyborg embodiment, from the lived experience of disability: * "Common Cyborg" by Jillian Weise, a poet, performance artist, and activist. (I've shared this essay before but I just love it so much). * "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and design researcher. If you have time for it, this last essay is a short Vice article from several years ago, which argues that the US should invest into exoskeletons rather than accessible environments. * "In the Transhumanist Age, We Should be Repairing Disabilities, Not Sidewalks" by Zoltan Istvan, an attempted politician and president of the Transhumanist Party. I'm really looking forward to our discussion and hearing everyone's thoughts! As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Thanks so much, and see y'all soon ~ - Franky _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her Create Safe Spaces for Students, Denounce Ableist Language: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Apr 1 13:33:18 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 1 Apr 2021 17:33:18 +0000 Subject: [Access Lunch] Happening Now: Accessibility Lunch Reading Group Message-ID: I realize I forgot to send the link again today. Here is where we are meeting now for accessibility lunch. Cynthia Bennett (she, her) is inviting you to a scheduled Zoom meeting. Topic: Accessibility Lunch Time: This is a recurring meeting Meet anytime Join Zoom Meeting https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Meeting ID: 951 7022 5799 Passcode: 626590 One tap mobile +12678310333,,95170225799#,,,,*626590# US (Philadelphia) +13126266799,,95170225799#,,,,*626590# US (Chicago) Dial by your location +1 267 831 0333 US (Philadelphia) +1 312 626 6799 US (Chicago) +1 470 250 9358 US (Atlanta) +1 470 381 2552 US (Atlanta) +1 646 518 9805 US (New York) +1 651 372 8299 US (Minnesota) +1 786 635 1003 US (Miami) +1 929 205 6099 US (New York) +1 301 715 8592 US (Washington DC) +1 720 928 9299 US (Denver) +1 971 247 1195 US (Portland) +1 206 337 9723 US (Seattle) +1 213 338 8477 US (Los Angeles) +1 253 215 8782 US (Tacoma) +1 346 248 7799 US (Houston) +1 602 753 0140 US (Phoenix) +1 669 219 2599 US (San Jose) +1 669 900 6833 US (San Jose) Meeting ID: 951 7022 5799 Passcode: 626590 Find your local number: https://cmu.zoom.us/u/aesGStfiK Join by SIP 95170225799 at zoomcrc.com Join by H.323 162.255.37.11 (US West) 162.255.36.11 (US East) 221.122.88.195 (China) 115.114.131.7 (India Mumbai) 115.114.115.7 (India Hyderabad) 213.19.144.110 (Amsterdam Netherlands) 213.244.140.110 (Germany) 103.122.166.55 (Australia Sydney) 103.122.167.55 (Australia Melbourne) 209.9.211.110 (Hong Kong SAR) 149.137.40.110 (Singapore) 64.211.144.160 (Brazil) 69.174.57.160 (Canada Toronto) 65.39.152.160 (Canada Vancouver) 207.226.132.110 (Japan Tokyo) 149.137.24.110 (Japan Osaka) Meeting ID: 951 7022 5799 Passcode: 626590 Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar From: Cynthia Bennett Sent: Thursday, April 1, 2021 10:12 AM To: 'Samantha Reig' ; 'Sara Kingsley' Cc: Franchesca Spektor ; 'accessibility-lunch at lists.andrew.cmu.edu' Subject: RE: [Access Lunch] Reading for this Week Hi, I am resending the previous email with one phrase added that I left out. Hi Everyone, Thank you for all of the contributions to this important discussion. I am reminded that we will make mistakes. While addressing them is imperative to maintaining a safer and accountable community, we can also do more to proactively prevent harm and keep our attendees who experience disabilities and are otherwise minoritized from the burden of explaining the impact of such harm and educating us. Sara, I am sorry that the readings caused harm and that it has led you to share personal information and unnecessarily educate us. I am taking action by learning how to better facilitate a safer space, spend more time on facilitating this group which has slipped from my time commitments lately, and pass these practices onto successive facilitators. Franky, I appreciate your response and I maintain hope that we can continue to grow during the reading group today. As a first step, I ask that we all commit to this: readings should never be chosen by one person alone. As facilitator this semester, I would like discussion leads to send readings to me so we can discuss their appropriateness and any content warnings that may need to accompany their assignment. I am ever learning but a couple of takeaways I can offer right now: *** The first takeaway contains discussions of medical rationing, in the next paragraph. *** First, while it is important to explore a variety of perspectives, ableist viewpoints on technology and disability being some, the materials that scaffold these perspectives must be chosen with intent commensurate with the potential harm they can cause. Assessing this potential requires us to first pause. Assigning readings without spending time with them is generally not a good idea. I am not saying anyone has done this; I am offering it as a general best practice. More specifically, if you?d like for us to explore topics as a group that cause egregious harm, you can choose readings that raise awareness of these important topics from a viewpoint that ultimately affirms people with disabilities are legitimate humans who do not need to be changed. While we may disagree on many things, the legitimacy and dignity of people with disabilities is a baseline that we all agree with. If that statement does not resonate with you or raises questions, I request that you reach out to me and we can discuss things you might do to work through your questions and concerns. Back to negotiating difficult topics, as a concrete example, I offer Alice Wong?s leadership on medical rationing during the COVID-19 pandemic. To discuss this topic, we could choose a myriad of articles written by people from many backgrounds an lived experiences. But negotiating such a topic with Alice Wong let?s us do so with a backdrop of disability affirmation. Her writing and commentating via her podcast regularly affirms the legitimacy and dignity of people with disabilities. Coming to this conclusion requires examining her other work and understanding her position to it. I know this is not always possible, but we can often learn more about the context and authors of our readings with effort. Choosing the above linked podcast also allows us to explore the topic of medical rationing with a perspective of someone who is arguably among those most impacted by it, being that she is a disabled Asian-American woman whose medical diagnoses are among those that might be classified as less deserving of the highest quality medical care. Relating this back to this week?s discussion, we could explore ableist disability erasure and techno solutionist approaches toward these ends by examining the texts by Jillian Weiss and Laura Forlano, as they directly commentate on the power medical and tech industries have on their bodies. The 3rd article could be mentioned in passing and with warning but is not needed. Franky has already recognized this in her follow-up message. Second, we are learning that language matters but there is seldom agreement on what language is most respectful. With that in mind, what I can offer as hopefully concrete and useful advice is this. As we read more disabled authors, we will read language they have claimed to refer to their own lived experience. This is their right and a form of resistance as this language has been/is still used to dehumanize them and harm them. Again, we should pause before we use language. In reflecting where we have read it, we can make better decisions about what language is appropriate for us to use given our position to the topic. While we have spent time this semester discussing the inappropriateness of taking up language nondisabled people have assigned but which disabled people largely find problematic (I think of phrases like ?special needs?), we should also recognize when a person with disabilities is reclaiming a term that would not be appropriate for nondisabled people, or even sometimes people with disabilities who do not have that specific experience, to use. To offer my own thought process as an example (which I am open for correction), as a visibly disabled person who uses both low and high tech which is regularly scrutinized and manipulated without my consent, I do sometimes use words like ?crip? to describe myself and my similarly-disabled friends. I do not however, use words associated with mental health conditions that have been used to degrade people who have those experiences. Even though I am disabled, I am not harmed by the mental health industrial complex in ways that have systematically harmed me. While we can reflect on and adapt our own language use, being a better ally and asking others to change their language can be tricky since we don?t want to force people to disclose their personal information. For example, in writing the previous example, I realize that we have been working at home for a year and some people join us who aren?t even in Pittsburgh. It is reasonable that someone could interpret my use of the word ?crip? as inappropriate as it is quite likely they have never seen my technologies or disabilities in action. If you find that someone is using language inappropriately, you might remind the group of appropriate language practices more generally and discuss with a confidant if and how you can directly address their potentially inappropriate language. I am happy to be this person in regard to unpacking language use during the reading group. Back to this week?s discussion, as Sara has mentioned, words like ?cyborg? and ?crip? are not words that nondisabled people should use. If you want to discuss more specifics about language, I am open to working with you to find the education necessary to traverse your questions. I will reserve the last part of reading group to discuss how we will move forward with care and to clarify the above takeaways. I look forward to learning with you later today. Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar From: Accessibility-lunch > On Behalf Of Samantha Reig Sent: Wednesday, March 31, 2021 7:57 PM To: Sara Kingsley > Cc: Franchesca Spektor >; accessibility-lunch at lists.andrew.cmu.edu Subject: Re: [Access Lunch] Reading for this Week Sara and I were discussing this a bit offline, and she shared with me a piece that's pertinent to this conversation. I'm passing it along with her permission: https://assistivetechjustice.medium.com/ableism-and-assistive-technology-926f4097a976 Best, Sam On Wed, Mar 31, 2021 at 1:28 PM Sara Kingsley > wrote: Post-note. I should have emphasized that the model regarding artificial pancreas decisions is not quite one of choice due to structural racism. Black and Hispanic people living with T1D do not have equal access to technology or medical care due to the structural racism of the United States. References: [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4533245/ [2] https://www.healio.com/news/endocrinology/20201231/black-young-adults-with-type-1-diabetes-less-likely-to-use-cgm-insulin-pump On Wed, Mar 31, 2021 at 1:15 PM Sara Kingsley > wrote: Franky, I really appreciate the time and care you've clearly put into crafting this note. I appreciate the additional context about Wiese and Forlano. At a future date, if you still have interest, I would be happy to share what I know of our use of artificial pancreases. It's a complicated history that is rapidly evolving, and one that is not a part of the techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very anarchic/autonomous crowd in terms of perspectives). Only until recently, many people were not permitted to use an artificial pancreas unless the management of their type 1 diabetes was at a state that it was considered the medicine or tool of second to last resort. With advances in technology, form factors, and machine learning (to my own surprise AI does sometimes save lives, though it has killed us too), and how those developments have interacted with major policy changes (Affordable Care Act) and pricing/economics, the model of care has changed to one of choice, eg, use the tech that works best for you. Our community continues to very hotly debate the use of language. For example, a lot of us are trained by medical professionals from a very early age to use person-first language. This is partly because studies indicate that young children thrive better with T1D when their personhood is centered (happy to provide readings about this upon request). We are also, some of us, subjected to harassment about our assistive technology. For example, I lost my high school education to bullying, violence against my artificial organ (having it ripped out), and being called similar terms as cyborg. Not all of us, thankfully, have had those experiences, but we are statistically or systematically excluded from educational institutions (linked readings are below). While a fair number of us do refer to ourselves by a range of terms, as you mentioned, it is not appropriate to refer to our demographic that way or any individual member of our community. These are our organs, we do not have the privilege to wear them on the inside anymore because the internal ones "died" (they still work for other things such as digestion but some of us say our pancreas is dead). I really appreciate you and this note. I've not really had a critical mass of T1Ds in any space I've had to survive. I'd imagine I'm not the only one here, but not sure what their preferences are. Either way, it really takes allies and a community speaking up and working with us to make sure we can exist everywhere, in any space, and that our lives are equal in economic opportunity and dignity. Article about school exclusion: https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html Department of Justice on the exclusion of Type 1 diabetics in school: https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes Here is article about ableist language, though we could perhaps benefit from creating comprehensive HCI Guidelines, I defer to the experts in the crowd on that: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html Thank you, Sara On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor > wrote: Sara, thank you for sharing this important perspective. I apologize that I did not use the term ?cyborg? with the care that it necessitates when introducing readings that take up controversial language. To respond to your message, I did some research on the ways ?cyborg? has been used to describe people with disabilities. As you mentioned, the term has been used to reduce people with disabilities into the ways they are enabled by technology. These reductions, along with the term?s propensity in science fiction, feed stereotypes that technology may ?fix? disability and that people with disabilities are subhuman, in particular, lacking warmth and human complexity. For others, like me, who could use more education on the topic, here are some resources I found that nuance the potential harms and limitations of reclaiming cyborg terminology. Importantly, this discussion is complex and ongoing and some disabled activists have made clear that cyborg is not a term nondisabled people should use in reference to people with disabilities. * Cyborgs, Cripples and iCrip: Reflections on the Contribution of Haraway to Disability Studies by Donna Reeve talks about why the cyborg figure hasn't been more utilized in disability studies. * The Cyborg and the Crip chapter in Feminist, Queer, Crip by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of pure/impure, natural/unnatural, natural/technological; rather than breaking down boundaries, it buttresses them" (109). * The intro of Building the Normal Body: Disability and the Techno-makeover by Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been traditionally ableist, from Haraway to Chris Hables Gray to John Hockenberry. * The Dawn of the 'Tryborg' by Jillian Weise, where she argues only disabled people should call themselves cyborgs since only disabled people depend on integrated technology. These different essays, perspectives, and bits of lineage are so important, and I hope we can continue discussing this nuance as a group. For instance, while Jillian Wiese uses a bionic leg and strongly identifies with the term cyborg, Laura Forlano, who uses an automatic insulin pump for type 1 diabetes does not. In both of their firsthand testimony, these authors detail the labor it requires to make their assistive technology work. I recognize that Zoltan Istvan?s controversial article is a troubling counterpoint to their perspectives, as it is 1) a blatant misunderstanding of the capacity of assistive tech, and 2) an insidious ideology that has influenced policy. In pairing it with Wiese and Forlano, I was hoping to draw out this historical tension between techno-solutionism and disability rights in our Thursday discussion. I apologize for not initially characterizing the harm perpetuated by Zoltan?s ideology -- especially as it concerns the term ?cyborg.? On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley > wrote: Hi everyone, I request that we not refer to everyone living with medical assistive technology as a "cyborg." For many of us, it is extraordinarily derogatory, ableist, and those terms have been used by non-disabled people to harass and commit acts of violence against disabled people. I also ask that we consider reading about the history of diabetes technology, the broader community whose lives depend on it before engaging in a discussion of type 1 diabetes. Thank you, Sara On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor > wrote: Hi everyone, For this week's reading, we'll explore the cyborg as the supposed "pinnacle" of assistive technology. Can cyborg technology eliminate disability? Who can afford to become a cyborg? How do these questions come to influence products and policy? These first two essays discuss the frictions of cyborg embodiment, from the lived experience of disability: * "Common Cyborg" by Jillian Weise, a poet, performance artist, and activist. (I've shared this essay before but I just love it so much). * "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and design researcher. If you have time for it, this last essay is a short Vice article from several years ago, which argues that the US should invest into exoskeletons rather than accessible environments. * "In the Transhumanist Age, We Should be Repairing Disabilities, Not Sidewalks" by Zoltan Istvan, an attempted politician and president of the Transhumanist Party. I'm really looking forward to our discussion and hearing everyone's thoughts! As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Thanks so much, and see y'all soon ~ - Franky _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her Create Safe Spaces for Students, Denounce Ableist Language: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Mon Apr 5 09:19:53 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 5 Apr 2021 13:19:53 +0000 Subject: [Access Lunch] Readings for This Week Message-ID: <81c1ff0fd3e847f98345215e70c1b319@andrew.cmu.edu> Hi Everyone, We'll read 2 pieces this week on smart speakers. The first (attached) concerns how blind people and their families are incorporating them into their homes. The second concerns a feminist, class, and critical race view on the role of such smart speakers. I chose the readings to explore tensions among digitized assistance for people with disabilities and often separated forms of care attendant and domestic labor. First reading (attached): Kevin M. Storer, Tejinder K. Judge, and Stacy M. Branham. 2020. "All in the Same Boat": Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20). Association for Computing Machinery, New York, NY, USA, 1-14. DOI:https://doi.org/10.1145/3313831.3376225 Second reading (linked HTML open access): Thao Phan. "Amazon Echo and the aesthetics of whiteness." Catalyst: Feminism, Theory, Technoscience 5, no. 1 (2019): 1-38. https://catalystjournal.org/index.php/catalyst/article/view/29586/24799 As always, join us at Accessibility Lunch on Thursday, April 8th at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Referring back to our discussion last week about the need to provide materials to onboard people to accessibility research, in lieu of a document not yet being ready, I highly recommend the Crip Camp: A Disability Revolution documentary for anyone who hasn't seen it. Crip Camp with audio description. https://www.youtube.com/watch?v=Kffi5J61N0c Crip Camp with no audio description. https://www.youtube.com/watch?v=OFS8SpwioZ4 Additionally, if anyone has ideas, I am also still looking for a reading that gets at the role education and insurance policy play in which technology people with disability get access to and how such policies also mediate their use, as discussed by Jillian Weiss and Laura Forlano in last week's readings. Finally, please be in touch when you'd like to lead discussion and we will work together to choose a reading. See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Storer_All in the Same Boat Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families.pdf Type: application/pdf Size: 1178602 bytes Desc: Storer_All in the Same Boat Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families.pdf URL: From skingsle at cs.cmu.edu Mon Apr 5 09:41:45 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Mon, 5 Apr 2021 09:41:45 -0400 Subject: [Access Lunch] Readings for This Week In-Reply-To: <81c1ff0fd3e847f98345215e70c1b319@andrew.cmu.edu> References: <81c1ff0fd3e847f98345215e70c1b319@andrew.cmu.edu> Message-ID: For type 1 diabetics, the biggest barrier to technology from insurance is insulin. Attached is an article about that. Here is a Twitter thread about the diabetes community's campaign for elimination of monopoly pricing by insurance companies: https://twitter.com/search?q=%23Insulin4all&src=typeahead_click Here is an account to which mutual aid is provided: https://twitter.com/MutualAidBetes On Mon, Apr 5, 2021 at 9:20 AM Cynthia Bennett wrote: > Hi Everyone, > > > > We?ll read 2 pieces this week on smart speakers. The first (attached) > concerns how blind people and their families are incorporating them into > their homes. The second concerns a feminist, class, and critical race view > on the role of such smart speakers. I chose the readings to explore > tensions among digitized assistance for people with disabilities and often > separated forms of care attendant and domestic labor. > > > > *First reading (attached):* > > *Kevin M. Storer, Tejinder K. Judge, and Stacy M. Branham. 2020. "All in > the Same Boat": Tradeoffs of Voice Assistant Ownership for > Mixed-Visual-Ability Families. In Proceedings of the 2020 CHI Conference on > Human Factors in Computing Systems (CHI '20). Association for Computing > Machinery, New York, NY, USA, 1?14. > DOI:https://doi.org/10.1145/3313831.3376225 > * > > > > *Second reading (linked HTML open access):* > > Thao Phan. "Amazon Echo and the aesthetics of whiteness." Catalyst: > Feminism, Theory, Technoscience 5, no. 1 (2019): 1-38. > > https://catalystjournal.org/index.php/catalyst/article/view/29586/24799 > > > > *As always, join us at Accessibility Lunch on Thursday, April 8th at 1:30 > PM EST here. **To access the meeting, please use this Zoom conference > link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 > * > > > > Referring back to our discussion last week about the need to provide > materials to onboard people to accessibility research, in lieu of a > document not yet being ready, I highly recommend the Crip Camp: A > Disability Revolution documentary for anyone who hasn?t seen it. > > > > Crip Camp with audio description. > > https://www.youtube.com/watch?v=Kffi5J61N0c > > > > Crip Camp with no audio description. > > https://www.youtube.com/watch?v=OFS8SpwioZ4 > > > > Additionally, if anyone has ideas, I am also still looking for a reading > that gets at the role education and insurance policy play in which > technology people with disability get access to and how such policies also > mediate their use, as discussed by Jillian Weiss and Laura Forlano in last > week?s readings. > > > > Finally, please be in touch when you?d like to lead discussion and we will > work together to choose a reading. > > > > See you Thursday, > > > > Cynthia L. Bennett > > Pronouns: she/her > > > > Twitter > > > > LinkedIn > > > > Google Scholar > > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: insulin_insurance.pdf Type: application/pdf Size: 858918 bytes Desc: not available URL: From cbennet2 at andrew.cmu.edu Mon Apr 5 10:41:56 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 5 Apr 2021 14:41:56 +0000 Subject: [Access Lunch] Readings for This Week In-Reply-To: References: <81c1ff0fd3e847f98345215e70c1b319@andrew.cmu.edu> Message-ID: <8991d254dbc04120b1b841212932ea0f@andrew.cmu.edu> Hi Sara, Thanks so much for sending this reading, Twitter thread, and mutual aid donation opportunity. For our next reading group on April 15, we can assign this article. I?ll work on learning whether there is a good accompaniment from HCI or a related field to learn how (if) we?re thinking about access to care, medicine, and technologies by people with type 1 diabetes. Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar From: Sara Kingsley Sent: Monday, April 5, 2021 9:42 AM To: Cynthia Bennett Cc: accessibility-lunch at lists.andrew.cmu.edu Subject: Re: [Access Lunch] Readings for This Week For type 1 diabetics, the biggest barrier to technology from insurance is insulin. Attached is an article about that. Here is a Twitter thread about the diabetes community's campaign for elimination of monopoly pricing by insurance companies: https://twitter.com/search?q=%23Insulin4all&src=typeahead_click Here is an account to which mutual aid is provided: https://twitter.com/MutualAidBetes On Mon, Apr 5, 2021 at 9:20 AM Cynthia Bennett > wrote: Hi Everyone, We?ll read 2 pieces this week on smart speakers. The first (attached) concerns how blind people and their families are incorporating them into their homes. The second concerns a feminist, class, and critical race view on the role of such smart speakers. I chose the readings to explore tensions among digitized assistance for people with disabilities and often separated forms of care attendant and domestic labor. First reading (attached): Kevin M. Storer, Tejinder K. Judge, and Stacy M. Branham. 2020. "All in the Same Boat": Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20). Association for Computing Machinery, New York, NY, USA, 1?14. DOI:https://doi.org/10.1145/3313831.3376225 Second reading (linked HTML open access): Thao Phan. "Amazon Echo and the aesthetics of whiteness." Catalyst: Feminism, Theory, Technoscience 5, no. 1 (2019): 1-38. https://catalystjournal.org/index.php/catalyst/article/view/29586/24799 As always, join us at Accessibility Lunch on Thursday, April 8th at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Referring back to our discussion last week about the need to provide materials to onboard people to accessibility research, in lieu of a document not yet being ready, I highly recommend the Crip Camp: A Disability Revolution documentary for anyone who hasn?t seen it. Crip Camp with audio description. https://www.youtube.com/watch?v=Kffi5J61N0c Crip Camp with no audio description. https://www.youtube.com/watch?v=OFS8SpwioZ4 Additionally, if anyone has ideas, I am also still looking for a reading that gets at the role education and insurance policy play in which technology people with disability get access to and how such policies also mediate their use, as discussed by Jillian Weiss and Laura Forlano in last week?s readings. Finally, please be in touch when you?d like to lead discussion and we will work together to choose a reading. See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Apr 8 12:30:05 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 8 Apr 2021 16:30:05 +0000 Subject: [Access Lunch] (Happening Today) Readings for This Week Message-ID: <972E4775-5CA4-47A1-9D7A-82B7C4BFB339@andrew.cmu.edu> ? Hi Everyone, We?ll read 2 pieces this week on smart speakers. The first (attached) concerns how blind people and their families are incorporating them into their homes. The second concerns a feminist, class, and critical race view on the role of such smart speakers. I chose the readings to explore tensions among digitized assistance for people with disabilities and often separated forms of care attendant and domestic labor. First reading (attached): Kevin M. Storer, Tejinder K. Judge, and Stacy M. Branham. 2020. "All in the Same Boat": Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20). Association for Computing Machinery, New York, NY, USA, 1?14. DOI:https://doi.org/10.1145/3313831.3376225 Second reading (linked HTML open access): Thao Phan. "Amazon Echo and the aesthetics of whiteness." Catalyst: Feminism, Theory, Technoscience 5, no. 1 (2019): 1-38. https://catalystjournal.org/index.php/catalyst/article/view/29586/24799 As always, join us at Accessibility Lunch on Thursday, April 8th at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Referring back to our discussion last week about the need to provide materials to onboard people to accessibility research, in lieu of a document not yet being ready, I highly recommend the Crip Camp: A Disability Revolution documentary for anyone who hasn?t seen it. Crip Camp with audio description. https://www.youtube.com/watch?v=Kffi5J61N0c Crip Camp with no audio description. https://www.youtube.com/watch?v=OFS8SpwioZ4 Additionally, if anyone has ideas, I am also still looking for a reading that gets at the role education and insurance policy play in which technology people with disability get access to and how such policies also mediate their use, as discussed by Jillian Weiss and Laura Forlano in last week?s readings. Finally, please be in touch when you?d like to lead discussion and we will work together to choose a reading. See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Storer_All in the Same Boat Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families.pdf Type: application/pdf Size: 1178602 bytes Desc: Storer_All in the Same Boat Tradeoffs of Voice Assistant Ownership for Mixed-Visual-Ability Families.pdf URL: From cbennet2 at andrew.cmu.edu Sun Apr 11 11:33:16 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Sun, 11 Apr 2021 15:33:16 +0000 Subject: [Access Lunch] Readings for 4/15 Message-ID: Hi Everyone, We'll read 2 (attached) pieces this week on challenges and opportunities for HCI to inform the design of diabetes technologies. They were selected by Sara Kingsley. The first article surveyed challenges users with type 1 diabetes have using insulin pumps. The second reading overviews advancements in DIY diabetes management technologies and associated pros and cons of unregulated medical technology. As always, join us at Accessibility Lunch on Thursday, April 15th at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Finally, please be in touch when you'd like to lead discussion and we will work together to choose a reading. See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Kesavadev2020_Article_TheDo-It-YourselfArtificialPan.pdf Type: application/pdf Size: 432737 bytes Desc: Kesavadev2020_Article_TheDo-It-YourselfArtificialPan.pdf URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Harper_Exploring the Challenges and Potential Alternatives to Insulin Pump Technologies.pdf Type: application/pdf Size: 589307 bytes Desc: Harper_Exploring the Challenges and Potential Alternatives to Insulin Pump Technologies.pdf URL: From jeffreybigham at gmail.com Tue Apr 13 19:38:57 2021 From: jeffreybigham at gmail.com (Jeffrey Bigham) Date: Tue, 13 Apr 2021 19:38:57 -0400 Subject: [Access Lunch] Fwd: Open call - SIGCHI Accessibility Committee members In-Reply-To: References: Message-ID: Many/most of you likely already got this, but passing it along in case it's of interest -- help to shape the accessibility of SIGCHI! -Jeff ---------- Forwarded message --------- From: Stacy Marie Branham Date: Tue, Apr 13, 2021 at 7:16 PM Subject: Open call - SIGCHI Accessibility Committee members To: Dear SIGCHI members, Soraia Prietch and I would like to invite volunteers to join leadership efforts to increase accessibility of our community through the establishment of a SIGCHI Accessibility Committee. Nominations/applications are due April 26, 5pm submitter's local time. Please see below for more details, and access the application form here: https://forms.gle/NE3VJWBdSGLzYTjJ9 ---- We are looking to convene a group of 10-15 globally dispersed accessibility experts and experts-in-training (e.g., students, people who are new to the field of accessibility) who are members of the SIGCHI community. Qualified candidates for this volunteer position are those who have experience with participating in and/or organizing ACM SIGCHI events and those who care deeply about pioneering an accessible, inclusive, equitable SIGCHI community. We seek a diverse applicant pool, including students; academic and industrial researchers; and practitioners. We expect the work will entail planning and carrying out accessibility initiatives; providing consultation for SIGCHI leadership on matters of accessibility best practices and policy development; and contributing inputs to longer-term strategy and budgeting for accessibility. Activities may include, but will not be limited to: - Proposing new policies and practices - Editing accessibility-related policies and help documents - Testing the accessibility of tools (e.g., conference platforms, PrecisionConference) - Developing internal and external accessibility educational materials - Producing accessible media (e.g., writing image descriptions) - Supporting selection of vendors for accessibility services (e.g., CART, SLI, etc.) - Developing assessment tools to evaluate accessibility in SIGCHI - Coordinating with other SIGCHI EC committees, the ACM, and external volunteer orgs This will be achieved through weekly teleconferences, asynchronous coordination through group chat and email, and collaborative document editing. We ask, therefore, that you be willing to make a time commitment of approximately 10-12 hours on a monthly basis. If you are keen to be a part of this group, please fill out our application form by April 26, 2021, 5pm in your local time zone: https://forms.gle/NE3VJWBdSGLzYTjJ9 For further details about the motivation for creating this committee, please see our open call on the SIGCHI blog: https://sigchi.org/2021/04/open-call-for-sigchi-accessibility-committee/ If you have any questions or concerns, please contact Soraia and Stacy at sigchi-access at acm.org. -- Best, Stacy Branham Soraia Prietch SIGCHI EC Adjunct Chairs of Accessibility sigchi-access at acm.org ________________________________ You can unsubscribe for this list at any time through this link: Unsubscribe From skingsle at cs.cmu.edu Thu Apr 15 11:59:16 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Thu, 15 Apr 2021 11:59:16 -0400 Subject: [Access Lunch] Readings for 4/15 In-Reply-To: References: Message-ID: Hi everyone, Below are 2 links to Continuous Glucose Monitor (CGM) simulators. One is a link to the mobile application version and the other link is to the desktop version. I tested each in advance. Using the desktop simulator in Chrome, with the Chrome captions browser extension, I got the simulator to have captions. For some reason though, I could not get the desktop simulator to play with sound. This might be due to my computer screen's sound system so it might work on your machine. For the mobile version, I downloaded the app onto my iPhone. I got the app to play with sounds but I could not find a way to use a voice assistant with the application or captions. However, the mobile application will give some idea of how loud the alarm is on CGMs. I'm sorry that there does not seem to be a fully accessible option. To my knowledge, this might be true for the non-simulator versions too that Type 1 Diabetics wear. I have more research to do on that however. In summary, the desktop and mobile versions give some idea of the blaring, loud, obnoxious alarm system and the graphical display of continuous glucose monitors. I'll continue to experiment and test options for accessible versions and send out anything I find, if people are interested to try the applications. Also apologies, I wanted to send the links sooner before the lunch in case people were interested to try one of the systems mentioned in the readings but I was testing options. I am happy to play the desktop and mobile simulators during lunch if that's of interest but we could also do that later if we want to focus on the readings. Please let me know at lunch. Thanks, Sara Desktop version of the CGM simulator: https://www.dexcomprovider.com/dexcom-g6-cgm-simulator/?_ga=2.49882022.1821398014.1618500960-286051674.1618500960 Apple iPhone version of the CGM simulator: https://apps.apple.com/us/app/dexcom-g6-simulator/id1352389740 Android Phone version of the CGM simulator: https://play.google.com/store/apps/details?id=com.dexcomg6simulator On Sun, Apr 11, 2021 at 11:33 AM Cynthia Bennett wrote: > Hi Everyone, > > > > We?ll read 2 (attached) pieces this week on challenges and opportunities > for HCI to inform the design of diabetes technologies. They were selected > by Sara Kingsley. The first article surveyed challenges users with type 1 > diabetes have using insulin pumps. The second reading overviews > advancements in DIY diabetes management technologies and associated pros > and cons of unregulated medical technology. > > > > *As always, join us at Accessibility Lunch on Thursday, April 15th at 1:30 > PM EST here. **To access the meeting, please use this Zoom conference > link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 > * > > > > Finally, please be in touch when you?d like to lead discussion and we will > work together to choose a reading. > > > > See you Thursday, > > > > Cynthia L. Bennett > > Pronouns: she/her > > > > Twitter > > > > LinkedIn > > > > Google Scholar > > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Apr 15 12:32:15 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 15 Apr 2021 16:32:15 +0000 Subject: [Access Lunch] Happening Today: Readings for 4/15 Message-ID: <2A9CFD58-A6B8-46D5-B6E2-86630EFB3CAE@andrew.cmu.edu> ? Hi Everyone, We?ll read 2 (attached) pieces this week on challenges and opportunities for HCI to inform the design of diabetes technologies. They were selected by Sara Kingsley. The first article surveyed challenges users with type 1 diabetes have using insulin pumps. The second reading overviews advancements in DIY diabetes management technologies and associated pros and cons of unregulated medical technology. As always, join us at Accessibility Lunch on Thursday, April 15th at 1:30 PM EST here. To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Finally, please be in touch when you?d like to lead discussion and we will work together to choose a reading. See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Kesavadev2020_Article_TheDo-It-YourselfArtificialPan.pdf Type: application/pdf Size: 432737 bytes Desc: Kesavadev2020_Article_TheDo-It-YourselfArtificialPan.pdf URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Harper_Exploring the Challenges and Potential Alternatives to Insulin Pump Technologies.pdf Type: application/pdf Size: 589307 bytes Desc: Harper_Exploring the Challenges and Potential Alternatives to Insulin Pump Technologies.pdf URL: From apavel at cs.cmu.edu Mon Apr 19 22:19:57 2021 From: apavel at cs.cmu.edu (Amy Pavel) Date: Tue, 20 Apr 2021 02:19:57 +0000 Subject: [Access Lunch] Readings for 4/22 Message-ID: <07a32af1acee4242bec48d6dfa0a36ab@cs.cmu.edu> Hi everyone, This week for accessibility lunch we will read a recent CHI 2021 pre-print titled ?Understanding Data Accessibility for People with Intellectual and Developmental Disabilities?. This paper is by Keke Wu, Emma Petersen, Tahmina Ahmad, David Burlinson, Shea Tanis, Danielle Albers Szafir (all from CU Boulder) and it won a best paper award! Preview: Long-standing guidelines for creating data visualizations are grounded in empirical studies of cognition and perception performed with neurotypical populations. Are these guidelines appropriate for people with intellectual and developmental disabilities? If not, how can we make visualization more cognitively accessible? Paper Link (also attached): http://cu-visualab.org/IDD/idd/assets/idd.pdf Zoom Link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 I look forward to discussing visualization guidelines, the findings of this paper and potential implications for other types of design guidelines in HCI (e.g., visual design, UX principles). Hope to see you there! Amy -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: CHI2021.pdf Type: application/pdf Size: 18273660 bytes Desc: CHI2021.pdf URL: From skingsle at cs.cmu.edu Tue Apr 20 12:10:00 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Tue, 20 Apr 2021 12:10:00 -0400 Subject: [Access Lunch] Call for Summer Project Collaborators: HCI Disability Guidelines Message-ID: Hi everyone,Would anyone like to work together on making HCI Disability Guidelines for Equity and Inclusion this summer? The guidelines would aim to follow the format of the HCI Gender Guidelines for Equity and Inclusion, which are at this link: https://www.morgan-klaus.com/gender-guidelines.htmlIf you?d be interested to join a working group and work together on the guidelines this summer, please send an email and we?ll start an email list and work to schedule the first meeting. Thank you, Sara -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From jbigham at cs.cmu.edu Tue Apr 20 14:01:23 2021 From: jbigham at cs.cmu.edu (Jeffrey Bigham) Date: Tue, 20 Apr 2021 14:01:23 -0400 Subject: [Access Lunch] Call for Summer Project Collaborators: HCI Disability Guidelines In-Reply-To: References: Message-ID: It would be good to understand what is out there, and what we would seek to expand upon/improve. For instance, SIGACCESS has this document, which I refer people to a lot: http://www.sigaccess.org/welcome-to-sigaccess/resources/accessible-writing-guide/ But, in general, I like the idea of helping people speak and write respectably. I feel like a lot of times well-meaning folks make obvious mistakes they could have avoided had they known where to look. -Jeff On Tue, Apr 20, 2021 at 12:11 PM Sara Kingsley wrote: > > Hi everyone,Would anyone like to work together on making HCI Disability Guidelines for Equity and Inclusion this summer? The guidelines would aim to follow the format of the HCI Gender Guidelines for Equity and Inclusion, which are at this link: https://www.morgan-klaus.com/gender-guidelines.htmlIf you?d be interested to join a working group and work together on the guidelines this summer, please send an email and we?ll start an email list and work to schedule the first meeting. > > Thank you, > Sara > > -- > Sara Kingsley > PhD student, Human-Computer Interaction Institute > School of Computer Science > Carnegie Mellon University > Pittsburgh, PA, USA > website: www.sarakingsley.info > Pronouns: she/her > > want to chat about research, projects or coursework? > please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -- == Associate Professor Ph.D. Program Director Human-Computer Interaction Institute Language Technologies Institute Carnegie Mellon University jeffreybigham.com From steinfeld at cmu.edu Thu Apr 22 11:04:08 2021 From: steinfeld at cmu.edu (Aaron Steinfeld) Date: Thu, 22 Apr 2021 11:04:08 -0400 Subject: [Access Lunch] Call for Summer Project Collaborators: HCI Disability Guidelines In-Reply-To: References: Message-ID: I often point people to the National Center on Disability and Journalism style guide. This has been around a long time and been refined over the years. https://ncdj.org/style-guide/ Full disclosure, Lisa (spouse) was one of their Advisory Board members back in the 2000's. Thanks, Aaron On Thu, Apr 22, 2021 at 10:40 AM Jeffrey Bigham wrote: > It would be good to understand what is out there, and what we would > seek to expand upon/improve. > > For instance, SIGACCESS has this document, which I refer people to a lot: > > http://www.sigaccess.org/welcome-to-sigaccess/resources/accessible-writing-guide/ > > But, in general, I like the idea of helping people speak and write > respectably. I feel like a lot of times well-meaning folks make > obvious mistakes they could have avoided had they known where to look. > > -Jeff > > On Tue, Apr 20, 2021 at 12:11 PM Sara Kingsley > wrote: > > > > Hi everyone,Would anyone like to work together on making HCI Disability > Guidelines for Equity and Inclusion this summer? The guidelines would aim > to follow the format of the HCI Gender Guidelines for Equity and Inclusion, > which are at this link: > https://www.morgan-klaus.com/gender-guidelines.htmlIf you?d be interested > to join a working group and work together on the guidelines this summer, > please send an email and we?ll start an email list and work to schedule the > first meeting. > > > > Thank you, > > Sara > > > > -- > > Sara Kingsley > > PhD student, Human-Computer Interaction Institute > > School of Computer Science > > Carnegie Mellon University > > Pittsburgh, PA, USA > > website: www.sarakingsley.info > > Pronouns: she/her > > > > want to chat about research, projects or coursework? > > please feel free to schedule time to meet with me at this link, thank > you: https://calendly.com/sarakingsley/sara-schedule > > > > _______________________________________________ > > Accessibility-lunch mailing list > > Accessibility-lunch at lists.andrew.cmu.edu > > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > > > > -- > == > Associate Professor > Ph.D. Program Director > > Human-Computer Interaction Institute > Language Technologies Institute > Carnegie Mellon University > jeffreybigham.com > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Apr 22 11:27:02 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 22 Apr 2021 15:27:02 +0000 Subject: [Access Lunch] Happening today: Readings for 4/22 Message-ID: <5FB3B33F-6C92-451F-8DBC-9856EC1F23F8@andrew.cmu.edu> ?Hi everyone, This week for accessibility lunch we will read a recent CHI 2021 pre-print titled ?Understanding Data Accessibility for People with Intellectual and Developmental Disabilities?. This paper is by Keke Wu, Emma Petersen, Tahmina Ahmad, David Burlinson, Shea Tanis, Danielle Albers Szafir (all from CU Boulder) and it won a best paper award! Preview: Long-standing guidelines for creating data visualizations are grounded in empirical studies of cognition and perception performed with neurotypical populations. Are these guidelines appropriate for people with intellectual and developmental disabilities? If not, how can we make visualization more cognitively accessible? Paper Link (also attached): http://cu-visualab.org/IDD/idd/assets/idd.pdf Zoom Link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 I look forward to discussing visualization guidelines, the findings of this paper and potential implications for other types of design guidelines in HCI (e.g., visual design, UX principles). Hope to see you there! Amy _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: CHI2021.pdf Type: application/pdf Size: 18273660 bytes Desc: CHI2021.pdf URL: From skingsle at cs.cmu.edu Thu Apr 22 13:17:03 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Thu, 22 Apr 2021 13:17:03 -0400 Subject: [Access Lunch] Call for Summer Project Collaborators: HCI Disability Guidelines In-Reply-To: References: Message-ID: Thank you so much Aaron and Jeff for the resources! We'll definitely cite and build upon those. I like how the National Center on Disability and Journalism style guide highlights preferences that specific disabled communities have. I am not aware of every group's preferences, especially around person-first language. I definitely need to do some more research on that. One question for the guidelines is maybe how much to break-down broad categories into specific disabilities in order to call attention to preferences and harmful stereotypes? Another is whether to center the Guidelines around accessibility and using assistive technology, given that resources exist for language? Everyone, we'll reach back out at the end of the semester. For those who have emailed, we'll schedule a first meeting for after that. Thank you again for the resources. Appreciate additional resources or recommendations people have! Thank you On Thu, Apr 22, 2021 at 11:04 AM Aaron Steinfeld wrote: > I often point people to the National Center on Disability and Journalism > style guide. This has been around a long time and been refined over the > years. > https://ncdj.org/style-guide/ > > Full disclosure, Lisa (spouse) was one of their Advisory Board members > back in the 2000's. > > Thanks, > Aaron > > On Thu, Apr 22, 2021 at 10:40 AM Jeffrey Bigham > wrote: > >> It would be good to understand what is out there, and what we would >> seek to expand upon/improve. >> >> For instance, SIGACCESS has this document, which I refer people to a lot: >> >> http://www.sigaccess.org/welcome-to-sigaccess/resources/accessible-writing-guide/ >> >> But, in general, I like the idea of helping people speak and write >> respectably. I feel like a lot of times well-meaning folks make >> obvious mistakes they could have avoided had they known where to look. >> >> -Jeff >> >> On Tue, Apr 20, 2021 at 12:11 PM Sara Kingsley >> wrote: >> > >> > Hi everyone,Would anyone like to work together on making HCI Disability >> Guidelines for Equity and Inclusion this summer? The guidelines would aim >> to follow the format of the HCI Gender Guidelines for Equity and Inclusion, >> which are at this link: >> https://www.morgan-klaus.com/gender-guidelines.htmlIf you?d be >> interested to join a working group and work together on the guidelines this >> summer, please send an email and we?ll start an email list and work to >> schedule the first meeting. >> > >> > Thank you, >> > Sara >> > >> > -- >> > Sara Kingsley >> > PhD student, Human-Computer Interaction Institute >> > School of Computer Science >> > Carnegie Mellon University >> > Pittsburgh, PA, USA >> > website: www.sarakingsley.info >> > Pronouns: she/her >> > >> > want to chat about research, projects or coursework? >> > please feel free to schedule time to meet with me at this link, thank >> you: https://calendly.com/sarakingsley/sara-schedule >> > >> > _______________________________________________ >> > Accessibility-lunch mailing list >> > Accessibility-lunch at lists.andrew.cmu.edu >> > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >> >> >> >> -- >> == >> Associate Professor >> Ph.D. Program Director >> >> Human-Computer Interaction Institute >> Language Technologies Institute >> Carnegie Mellon University >> jeffreybigham.com >> _______________________________________________ >> Accessibility-lunch mailing list >> Accessibility-lunch at lists.andrew.cmu.edu >> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >> > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From bre at ucsc.edu Fri Apr 23 17:30:31 2021 From: bre at ucsc.edu (Breanna Baltaxe-Admony) Date: Fri, 23 Apr 2021 14:30:31 -0700 Subject: [Access Lunch] Call for Summer Project Collaborators: HCI Disability Guidelines In-Reply-To: References: Message-ID: I was just thinking about this and thought the Crip Technoscience Manifesto could be a good place to pull from too! https://catalystjournal.org/index.php/catalyst/article/view/29607 Bre On Thu, Apr 22, 2021 at 10:17 AM Sara Kingsley wrote: > Thank you so much Aaron and Jeff for the resources! We'll definitely cite > and build upon those. > > I like how the National Center on Disability and Journalism style guide > highlights preferences that specific disabled communities have. I am not > aware of every group's preferences, especially around person-first > language. I definitely need to do some more research on that. One question > for the guidelines is maybe how much to break-down broad categories into > specific disabilities in order to call attention to preferences and harmful > stereotypes? Another is whether to center the Guidelines around > accessibility and using assistive technology, given that resources exist > for language? > > Everyone, we'll reach back out at the end of the semester. For those who > have emailed, we'll schedule a first meeting for after that. > > Thank you again for the resources. Appreciate additional resources or > recommendations people have! Thank you > > On Thu, Apr 22, 2021 at 11:04 AM Aaron Steinfeld > wrote: > >> I often point people to the National Center on Disability and Journalism >> style guide. This has been around a long time and been refined over the >> years. >> https://ncdj.org/style-guide/ >> >> Full disclosure, Lisa (spouse) was one of their Advisory Board members >> back in the 2000's. >> >> Thanks, >> Aaron >> >> On Thu, Apr 22, 2021 at 10:40 AM Jeffrey Bigham >> wrote: >> >>> It would be good to understand what is out there, and what we would >>> seek to expand upon/improve. >>> >>> For instance, SIGACCESS has this document, which I refer people to a lot: >>> >>> http://www.sigaccess.org/welcome-to-sigaccess/resources/accessible-writing-guide/ >>> >>> But, in general, I like the idea of helping people speak and write >>> respectably. I feel like a lot of times well-meaning folks make >>> obvious mistakes they could have avoided had they known where to look. >>> >>> -Jeff >>> >>> On Tue, Apr 20, 2021 at 12:11 PM Sara Kingsley >>> wrote: >>> > >>> > Hi everyone,Would anyone like to work together on making HCI >>> Disability Guidelines for Equity and Inclusion this summer? The guidelines >>> would aim to follow the format of the HCI Gender Guidelines for Equity and >>> Inclusion, which are at this link: >>> https://www.morgan-klaus.com/gender-guidelines.htmlIf you?d be >>> interested to join a working group and work together on the guidelines this >>> summer, please send an email and we?ll start an email list and work to >>> schedule the first meeting. >>> > >>> > Thank you, >>> > Sara >>> > >>> > -- >>> > Sara Kingsley >>> > PhD student, Human-Computer Interaction Institute >>> > School of Computer Science >>> > Carnegie Mellon University >>> > Pittsburgh, PA, USA >>> > website: www.sarakingsley.info >>> > Pronouns: she/her >>> > >>> > want to chat about research, projects or coursework? >>> > please feel free to schedule time to meet with me at this link, thank >>> you: https://calendly.com/sarakingsley/sara-schedule >>> > >>> > _______________________________________________ >>> > Accessibility-lunch mailing list >>> > Accessibility-lunch at lists.andrew.cmu.edu >>> > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>> >>> >>> >>> -- >>> == >>> Associate Professor >>> Ph.D. Program Director >>> >>> Human-Computer Interaction Institute >>> Language Technologies Institute >>> Carnegie Mellon University >>> jeffreybigham.com >>> _______________________________________________ >>> Accessibility-lunch mailing list >>> Accessibility-lunch at lists.andrew.cmu.edu >>> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>> >> > > -- > *Sara Kingsley* > PhD student, Human-Computer Interaction Institute > School of Computer Science > Carnegie Mellon University > Pittsburgh, PA, USA > website: www.sarakingsley.info > Pronouns: she/her > > *want to chat about research, projects or coursework?* > please feel free to schedule time to meet with me at this link, thank you: > https://calendly.com/sarakingsley/sara-schedule > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -- Breanna Baltaxe-Admony PhD Student | Graduate Community Manager Computational Media University of California Santa Cruz -------------- next part -------------- An HTML attachment was scrubbed... URL: From apavel at cs.cmu.edu Mon Apr 26 17:36:34 2021 From: apavel at cs.cmu.edu (Amy Pavel) Date: Mon, 26 Apr 2021 21:36:34 +0000 Subject: [Access Lunch] Reading for 4/26 (1:30-2:30pm EDT) Message-ID: <87107eaa3418440e8f9bcf8ed48ad036@cs.cmu.edu> Hi Everyone! This week for accessibility lunch we will read a CSCW 2020 paper titled ?Sociocultural Dimensions of Tracking Health and Taking Care" by Karthik S. Bhat and Neha Kumar. Zoom link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Paper link (also attached): https://dl.acm.org/doi/abs/10.1145/3415200 This paper investigates how and why people use (or do not use) technology such as health tracking applications to manage cardiac disease by interviewing with 18 people with cardiac disease (in Bangalore, India) along with their families, and 8 doctors. I look forward to chatting about: What are the ecological and cultural factors that impact "self-tracking"? What are the trade-offs of recording health-related data? How can future tech provide better support? Hope to see you there! Amy -------------- next part -------------- A non-text attachment was scrubbed... Name: CSCW2020.pdf Type: application/pdf Size: 529121 bytes Desc: CSCW2020.pdf URL: From cbennet2 at andrew.cmu.edu Thu Apr 29 08:18:35 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 29 Apr 2021 12:18:35 +0000 Subject: [Access Lunch] Happening Today: Reading for 4/29 (1:30-2:30pm EDT) In-Reply-To: <87107eaa3418440e8f9bcf8ed48ad036@cs.cmu.edu> References: <87107eaa3418440e8f9bcf8ed48ad036@cs.cmu.edu> Message-ID: From: Amy Pavel Date: April 26, 2021 at 5:36:59 PM EDT To: accessibility-lunch at lists.andrew.cmu.edu Subject: [Access Lunch] Reading for 4/29 (1:30-2:30pm EDT) ?Hi Everyone! This week for accessibility lunch we will read a CSCW 2020 paper titled ?Sociocultural Dimensions of Tracking Health and Taking Care" by Karthik S. Bhat and Neha Kumar. Zoom link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Paper link (also attached): https://dl.acm.org/doi/abs/10.1145/3415200 This paper investigates how and why people use (or do not use) technology such as health tracking applications to manage cardiac disease by interviewing with 18 people with cardiac disease (in Bangalore, India) along with their families, and 8 doctors. I look forward to chatting about: What are the ecological and cultural factors that impact "self-tracking"? What are the trade-offs of recording health-related data? How can future tech provide better support? Hope to see you there! Amy _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: CSCW2020.pdf Type: application/pdf Size: 529121 bytes Desc: CSCW2020.pdf URL: From cbennet2 at andrew.cmu.edu Mon May 3 10:07:44 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 3 May 2021 14:07:44 +0000 Subject: [Access Lunch] Reading for 5/4; Last Meeting of Semester; Sign Up for Summer Reading! Message-ID: <3a07519cde1340e7ac4b18e343a9eaad@andrew.cmu.edu> Hi Everyone, First, for our last reading group of spring semester, we?ll read one paper this week on considerations we should taken into account for building infrastructures to collect disability-related data. These design considerations were developed from semi structured interviews with people with disabilities and a probe which simulated collecting data. Fairness, accountability, and transparency of AI systems is a hot topic, as we probably all know. How to use machine learning to relieve access barriers and empower us to be able to customize our experiences often requires data. Disability and health-related data is often protected by law but is also sensitive, resulting in negative experiences and outright discrimination, keeping people with disabilities cautious to disclose. I am excited to red this paper as this topic has been a big stuck point for me. Second, this Thursday, May 4 is our last reading group of spring semester. We?ll take a few weeks off but I?d love to continue reading for the summer. Please let me know if you?d like to be included, and please pass this announcement around to your colleagues. We?ll include some introductory material on disability and disability studies in hopes of welcoming summer interns, and anyone who is new to accessibility and disability. So whether or not you can join, please do share your key readings; I for example really appreciated the reading Sara offered on people with type 1 diabetes published at Pervasive Health as I thought it was a really accessible educational piece that would resonate with new learners. I hope you will consider joining, as even if this material is familiar to you, you can be a great discussant as we all learn from people who have experiences different from us. Be sure to let me know if you?re committed to reading and attending an hour-long meeting each week as those who share their interest will be sent a poll so we can pick a time that hopefully works for everyone. As always, join us at Accessibility Lunch on Thursday, May 6th at 1:30 PM EST here. https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf Type: application/pdf Size: 601326 bytes Desc: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf URL: From cbennet2 at andrew.cmu.edu Mon May 3 10:12:18 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 3 May 2021 14:12:18 +0000 Subject: [Access Lunch] (Correct Date) Reading for 5/6; Last Meeting of Semester; Sign Up for Summer Reading! Message-ID: <9e7ebace582947469e4373948ff0b066@andrew.cmu.edu> Sorry; ignore my last message. This one has the correct date. Hi Everyone, First, for our last reading group of spring semester, we?ll read one paper this week on considerations we should taken into account for building infrastructures to collect disability-related data. These design considerations were developed from semi structured interviews with people with disabilities and a probe which simulated collecting data. Fairness, accountability, and transparency of AI systems is a hot topic, as we probably all know. How to use machine learning to relieve access barriers and empower us to be able to customize our experiences often requires data. Disability and health-related data is often protected by law but is also sensitive, resulting in negative experiences and outright discrimination, keeping people with disabilities cautious to disclose. I am excited to red this paper as this topic has been a big stuck point for me. Second, this Thursday, May 6th is our last reading group of spring semester. We?ll take a few weeks off but I?d love to continue reading for the summer. Please let me know if you?d like to be included, and please pass this announcement around to your colleagues. We?ll include some introductory material on disability and disability studies in hopes of welcoming summer interns, and anyone who is new to accessibility and disability. So whether or not you can join, please do share your key readings; I for example really appreciated the reading Sara offered on people with type 1 diabetes published at Pervasive Health as I thought it was a really accessible educational piece that would resonate with new learners. I hope you will consider joining, as even if this material is familiar to you, you can be a great discussant as we all learn from people who have experiences different from us. Be sure to let me know if you?re committed to reading and attending an hour-long meeting each week as those who share their interest will be sent a poll so we can pick a time that hopefully works for everyone. As always, join us at Accessibility Lunch on Thursday, May 6th at 1:30 PM EST here. https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 See you Thursday, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf Type: application/pdf Size: 601326 bytes Desc: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf URL: -------------- next part -------------- An embedded and charset-unspecified text was scrubbed... Name: ATT00001.txt URL: From cbennet2 at andrew.cmu.edu Thu May 6 10:15:30 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 6 May 2021 14:15:30 +0000 Subject: [Access Lunch] Happening Today: Reading for 5/6; Last Meeting of Semester; Sign Up for Summer Reading! Message-ID: <3ec04c95e61249d89f3070b90b96763e@andrew.cmu.edu> Hi Everyone, First, for our last reading group of spring semester, we?ll read one paper this week on considerations we should taken into account for building infrastructures to collect disability-related data. These design considerations were developed from semi structured interviews with people with disabilities and a probe which simulated collecting data. Fairness, accountability, and transparency of AI systems is a hot topic, as we probably all know. How to use machine learning to relieve access barriers and empower us to be able to customize our experiences often requires data. Disability and health-related data is often protected by law but is also sensitive, resulting in negative experiences and outright discrimination, keeping people with disabilities cautious to disclose. I am excited to red this paper as this topic has been a big stuck point for me. Second, this Thursday, May 6th is our last reading group of spring semester. We?ll take a few weeks off but I?d love to continue reading for the summer. Please let me know if you?d like to be included, and please pass this announcement around to your colleagues. We?ll include some introductory material on disability and disability studies in hopes of welcoming summer interns, and anyone who is new to accessibility and disability. So whether or not you can join, please do share your key readings; I for example really appreciated the reading Sara offered on people with type 1 diabetes published at Pervasive Health as I thought it was a really accessible educational piece that would resonate with new learners. I hope you will consider joining, as even if this material is familiar to you, you can be a great discussant as we all learn from people who have experiences different from us. Be sure to let me know if you?re committed to reading and attending an hour-long meeting each week as those who share their interest will be sent a poll so we can pick a time that hopefully works for everyone. As always, join us at Accessibility Lunch on Thursday, May 6th at 1:30 PM EST here. https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 See you later, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf Type: application/pdf Size: 601326 bytes Desc: Bragg_Designing an Online Infrastructure for Collecting AI Data From People With Disabilities.pdf URL: -------------- next part -------------- An embedded and charset-unspecified text was scrubbed... Name: ATT00001.txt URL: From cbennet2 at andrew.cmu.edu Thu Jun 3 09:03:44 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 3 Jun 2021 13:03:44 +0000 Subject: [Access Lunch] Notice of Summer Reading Group on Accessibility and Disability Message-ID: <7b26961e676c422ebd0656a1b2adec1e@andrew.cmu.edu> Hi Everyone, Some of us interested in accessibility and disability will have a reading group weekly, Fridays from 3 to 4 PM Eastern, starting 6/11. If you'd like to join, please reach out to me individually. We won't post our meetings on any public lists since we'll all be agreeing to some community commitments with the intent to respect each other and to foster a safer space. Before expressing interest, please reflet whether you can attend most meetings during this time through August, whether you can dedicate 1-2 hours to spend with each week's readings (in addition to our meeting), whether you can commit to choose readings and lead discussion one week, and whether you can commit to learning and fostering an anti-ableist/anti-oppressive space. If it won't work this summer, let me know if you'd like to be included in a poll to set the time for a future accessibility reading group. Thanks, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: