From cbennet2 at andrew.cmu.edu Sun Jan 31 10:04:12 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Sun, 31 Jan 2021 15:04:12 +0000 Subject: [Access Lunch] Join Accessibility Reading Group Spring Semester Message-ID: Hi Everyone, Due to our amazing discussions last summer, Accessibility Lunch will again become a reading group during spring semester. We'll meet every Thursday from 1:30 to 2:30 Eastern Time at the Zoom link below. If you'd like to join and you aren't already subscribed, join the Accessibility Lunch email list as we won't send announcements to HCII every week. We also welcome this message to be shared outside of HCII to anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. We'll kick off the semester on February 4 by reading a review of accessibility research. The paper is attached. We'll also take volunteers to lead discussion on future dates. Lead discussants email out their chosen reading the week prior and then lead casual discussion of the reading during the next Accessibility Lunch. Join Accessibility Lunch on Thursday, February 4 at 1:30 PM Eastern Time here: https://cmu.zoom.us/j/94637562700#success Join the Accessibility Lunch email list here to insure that you receive future announcements. Thank you for joining and sharing! Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Mack_What Do We Mean by Accessibility Research A Literature Survey of Accessibility Papers in CHI and ASSETS from 1994 to 2019.pdf Type: application/pdf Size: 1981128 bytes Desc: Mack_What Do We Mean by Accessibility Research A Literature Survey of Accessibility Papers in CHI and ASSETS from 1994 to 2019.pdf URL: From cbennet2 at andrew.cmu.edu Thu Feb 4 09:35:59 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 4 Feb 2021 14:35:59 +0000 Subject: [Access Lunch] Happening Today 1:30 P: Join Accessibility Reading Group Spring Semester Message-ID: <44cf49a3ccaa480cb4795b004de6e6c7@andrew.cmu.edu> Hi Everyone, Due to our amazing discussions last summer, Accessibility Lunch will again become a reading group during spring semester. We'll meet every Thursday from 1:30 to 2:30 Eastern Time at the Zoom link below. If you'd like to join and you aren't already subscribed, join the Accessibility Lunch email list as we won't send announcements to HCII every week. We also welcome this message to be shared outside of HCII to anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. We'll kick off the semester on February 4 by reading a review of accessibility research. The paper is attached. We'll also take volunteers to lead discussion on future dates. Lead discussants email out their chosen reading the week prior and then lead casual discussion of the reading during the next Accessibility Lunch. Join Accessibility Lunch on Thursday, February 4 at 1:30 PM Eastern Time here: https://cmu.zoom.us/j/94637562700#success Join the Accessibility Lunch email list here to insure that you receive future announcements. Thank you for joining and sharing! Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Mack_What Do We Mean by Accessibility Research A Literature Survey of Accessibility Papers in CHI and ASSETS from 1994 to 2019.pdf Type: application/pdf Size: 1981128 bytes Desc: Mack_What Do We Mean by Accessibility Research A Literature Survey of Accessibility Papers in CHI and ASSETS from 1994 to 2019.pdf URL: From skingsle at cs.cmu.edu Thu Feb 4 16:11:18 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Thu, 4 Feb 2021 16:11:18 -0500 Subject: [Access Lunch] Happening Today 1:30 P: Join Accessibility Reading Group Spring Semester In-Reply-To: <44cf49a3ccaa480cb4795b004de6e6c7@andrew.cmu.edu> References: <44cf49a3ccaa480cb4795b004de6e6c7@andrew.cmu.edu> Message-ID: Cynthia, thank you so much for organizing the accessibility lunch. I am really excited to participate and learn with everyone this semester. Hi everyone, below, I have provided a link to the Twitter thread that discusses the issue of only naming "diabetes" versus distinguishing Type 1 and Type 2 diabetes in the medical literature, e.g., the impact is that Type 1 diabetics were left off the CDC's covid vaccine prioritization schedule. In the Twitter thread, there are links to the CDC's website and list of comorbidities (Type 1 diabetes is left off) and the Twitter user discusses their literature review of covid impacts to persons living with diabetes, highlighting that the research literature does not make a distinction between the two diseases even though the diseases are very different. For example, one is a metabolism disease (Type 2) and the other is an autoimmune disease (Type 1). The difference results in different risk profiles for severe or life-threatening covid. In one of the tweets, there is a screenshot of a graph from one of the research papers that shows the different odds ratios of dying from covid -- Type 1 diabetes has a much higher odds ratio than Type 2. I wasn't sure if anyone would be interested to read the thread but thought I would send in case. Here is a link to the thread: https://twitter.com/emmavaninwegen/status/1356583215675412480?s=27 Here is the username and text of the first tweet in the thread: username: emmavaninwegen (@Emma van Inwegen) Tweeted: "Type2 diabetes is on the CDCs list of covid comorbidities but Type1 is not. So I went through all the journal articles the CDC cites, expecting to see covid has worse outcomes for T2Ds than T1Ds. The articles either show the opposite, or don't distinguish between T2/T1" Thank you, Sara On Thu, Feb 4, 2021 at 9:36 AM Cynthia Bennett wrote: > Hi Everyone, > > > > Due to our amazing discussions last summer, Accessibility Lunch will again > become a reading group during spring semester. We?ll meet every Thursday > from 1:30 to 2:30 Eastern Time at the Zoom link below. If you?d like to > join and you aren?t already subscribed, join the Accessibility Lunch email > list as we won?t send announcements to HCII every week. We also welcome > this message to be shared outside of HCII to anyone interested in > accessibility, disability, and technology, but please do not post the Zoom > link publicly. > > > > We?ll kick off the semester on February 4 by reading a review of > accessibility research. The paper is attached. We?ll also take volunteers > to lead discussion on future dates. Lead discussants email out their chosen > reading the week prior and then lead casual discussion of the reading > during the next Accessibility Lunch. > > > > Join Accessibility Lunch on Thursday, February 4 at 1:30 PM Eastern Time > here: > > https://cmu.zoom.us/j/94637562700#success > > > > Join the Accessibility Lunch email list here to insure that you receive > future announcements. > > > > > Thank you for joining and sharing! > > > > > > Cynthia L. Bennett > > Pronouns: she/her > > > > Twitter > > > > LinkedIn > > > > Google Scholar > > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -- Sara C. Kingsley (pronouns: she/her) PhD scholar School of Computer Science Carnegie Mellon University 5000 Forbes Avenue Pittsburgh, PA 15213 *website: *www.sarakingsley.info *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/skingsle/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From svalenci at andrew.cmu.edu Thu Feb 4 16:46:08 2021 From: svalenci at andrew.cmu.edu (Stephanie Valencia Valencia) Date: Thu, 4 Feb 2021 16:46:08 -0500 Subject: [Access Lunch] Reading for next Thursday February 11th Message-ID: Hi Everyone, We had a great discussion today, thank you so much Cynthia for hosting and leading! I am looking forward to continuing our reading group discussion next week with a chapter from the Disability Visibility book by Alice Wong. Disability Visibility presents first-person stories from the 21st century. We will be reading the chapter "Gaining Power through Communication Access" featuring Lateef McLeod. Please find the reading attached. As a reminder, we meet every Thursday from 1:30 to 2:30 Eastern Time at the Zoom link below. Also, we are *looking for a volunteer to choose our next reading and lead the discussion on February 18. *Interested people can email Cynthia Bennett. Feel free to also reach out if you would like to facilitate a discussion for the reading group but are not sure about what reading to suggest, we are happy to help with that! We welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. Join Accessibility Lunch on Thursday, February 4 at 1:30 PM Eastern Time here: https://cmu.zoom.us/j/94637562700 Join the Accessibility Lunch email list here to ensure that you receive future announcements. Looking forward to our next discussion on February 11th! Have a wonderful week, Stephanie -- Stephanie Valencia Ph.D. Student Human Computer Interaction Institute at Carnegie Mellon -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Wong_Disability Visibility First-Person Stories from the Twenty-First Century by(1).epub Type: application/epub+zip Size: 2790218 bytes Desc: not available URL: From svalenci at andrew.cmu.edu Thu Feb 11 10:30:15 2021 From: svalenci at andrew.cmu.edu (Stephanie Valencia Valencia) Date: Thu, 11 Feb 2021 10:30:15 -0500 Subject: [Access Lunch] Happening Today 1:30 PM: Join Accessibility Reading Group Message-ID: Hi Everyone, We will continue our reading group discussion with a chapter from the Disability Visibility book by Alice Wong. Disability Visibility presents first-person stories from the 21st century. We will be reading the chapter "Gaining Power through Communication Access" featuring Lateef McLeod. Please find the reading attached. As a reminder, we meet every Thursday from 1:30 to 2:30 Eastern Time at the Zoom link below. Also, we are *looking for a volunteer to choose our next reading and lead the discussion on February 18. *If you are interested you can email Cynthia Bennett. Feel free to also reach out if you would like to facilitate a discussion for the reading group but are not sure about what reading to suggest, we are happy to help with that! We welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. *Join Accessibility Lunch on Thursday, February 11th at 1:30 PM Eastern Time here:* https://cmu.zoom.us/j/94637562700 Join the Accessibility Lunch email list here to ensure that you receive future announcements. Looking forward to our next discussion today, February 11th. -- Stephanie Valencia Ph.D. Student Human Computer Interaction Institute at Carnegie Mellon -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Wong_Disability Visibility First-Person Stories from the Twenty-First Century by(1).epub Type: application/epub+zip Size: 2790218 bytes Desc: not available URL: From jiwoongj at andrew.cmu.edu Mon Feb 15 10:07:45 2021 From: jiwoongj at andrew.cmu.edu (Joon Jang) Date: Mon, 15 Feb 2021 10:07:45 -0500 Subject: [Access Lunch] Reading for Thursday Feb 18th In-Reply-To: References: Message-ID: <330a0d6f-fe7e-4495-8110-148246211d3b@Spark> Hi all, I hope you?re all safe and well! For this week?s reading, I wanted us to discuss what kind of exposure and consideration undergraduates and graduate students have with disability and accessibility - and the paper for this week is ?Understanding the Motivations of Final-year Computing Undergraduates for Considering Accessibility? by Conn et al. which was published in ACM TOCE20. (attached to the email) This particular paper considers only undergraduate students who majored in STEM disciplines, but it would be great to get everyone?s experiences and observations from their home university with respect to how access is addressed at a curricular or campus culture level. If you have any notes you?d like to share, please feel free to share them here (https://docs.google.com/document/d/1ZxCm-vV0OhmL7vSvVcgS_Zey9-dEH8gOnOAnPpzNynM/edit?usp=sharing). For those short on time, I?d recommend Section 5.1 and 7 (?Analysis and Findings? and ?Discussion? respectively). As always, join us at Accessibility Lunch on Thursday, February 18th at 1:30 PM Eastern Time here: https://cmu.zoom.us/j/94637562700 We?welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. Join the Accessibility Lunch email list here to ensure that you receive future announcements. Please stay safe (and warm)! Joon ???????????????????? JiWoong (Joon) Jang - (he, him, his) Carnegie Mellon University, SCS BS in AI - Class of 2022 -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: TOCE20.pdf Type: application/octet-stream Size: 289787 bytes Desc: not available URL: From jiwoongj at andrew.cmu.edu Thu Feb 18 09:45:25 2021 From: jiwoongj at andrew.cmu.edu (Joon Jang) Date: Thu, 18 Feb 2021 09:45:25 -0500 Subject: [Access Lunch] (Happening Today!) Reading for Thursday Feb 18th In-Reply-To: <330a0d6f-fe7e-4495-8110-148246211d3b@Spark> References: <330a0d6f-fe7e-4495-8110-148246211d3b@Spark> Message-ID: Hi all, quick reminder that this is happening today at 1:30PM ET! Zoom Link:?https://cmu.zoom.us/j/94637562700 best, Joon ???????????????????? JiWoong (Joon) Jang - (he, him, his) Carnegie Mellon University, SCS BS in AI - Class of 2022 On Feb 15, 2021, 10:07 AM -0500, Joon Jang , wrote: > Hi all, I hope you?re all safe and well! > > For this week?s reading, I wanted us to discuss what kind of exposure and consideration undergraduates and graduate students have with disability and accessibility - and the paper for this week is ?Understanding the Motivations of Final-year Computing Undergraduates for Considering Accessibility? by Conn et al. which was published in ACM TOCE20. (attached to the email) > > This particular paper considers only undergraduate students who majored in STEM disciplines, but it would be great to get everyone?s experiences and observations from their home university with respect to how access is addressed at a curricular or campus culture level. If you have any notes you?d like to share, please feel free to share them here (https://docs.google.com/document/d/1ZxCm-vV0OhmL7vSvVcgS_Zey9-dEH8gOnOAnPpzNynM/edit?usp=sharing). > > For those short on time, I?d recommend Section 5.1 and 7 (?Analysis and Findings? and ?Discussion? respectively). > > As always, join us at Accessibility Lunch on Thursday, February 18th at 1:30 PM Eastern Time here: > https://cmu.zoom.us/j/94637562700 > > We?welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. > > Join the Accessibility Lunch email list here to ensure that you receive future announcements. > > Please stay safe (and warm)! > Joon > > ???????????????????? > JiWoong (Joon) Jang - (he, him, his) > Carnegie Mellon University, SCS > BS in AI - Class of 2022 > -------------- next part -------------- An HTML attachment was scrubbed... URL: From bre at ucsc.edu Fri Feb 19 15:51:36 2021 From: bre at ucsc.edu (Breanna Baltaxe-Admony) Date: Fri, 19 Feb 2021 12:51:36 -0800 Subject: [Access Lunch] Reading for Thursday Feb 25 Message-ID: Hi everyone, This week, we'll chat about interdependence, access intimacy, and forced intimacy. I'd like to share several blog posts from Mia Mingus and A.H Reaume for this week's reading. Thanks to Cindy for helping me curate this list! *Here are the readings for this week: * - Mia Mingus's speaking excerpts on interdependence - https://leavingevidence.wordpress.com/2010/01/22/interdependency-exerpts-from-several-talks/ - A blog post by A.H Reaume on interdependence (also featured in Disability Visibility!) - http://open-book.ca/Columnists/Interdependence-as-Disabled-Poetics-and-Praxis-Or-Why-My-Novel-is-Dedicated-to-My-Disabled-Friend-Maddy - A blog post by Mia Mingus on access intimacy - https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/ - A blog post by Mia Mingus on forced intimacy - https://leavingevidence.wordpress.com/2017/08/06/forced-intimacy-an-ableist-norm/ If you're interested in reading more in the future, I've attached three readings on interdependence in assistive technology contexts. I'd also suggest this talk from Mia Mingus as further reading. I'm so looking forward to our discussion! I've really enjoyed being a part of this reading group and getting to know you all. :) *As always, join us at Accessibility Lunch on Thursday, February 18th at 1:30 PM Eastern Time here:* https://cmu.zoom.us/j/94637562700 We welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. Join the Accessibility Lunch email list here to ensure that you receive future announcements. All the best, Bre -- Breanna Baltaxe-Admony PhD Student | Graduate Community Manager Computational Media University of California Santa Cruz -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... 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Name: bennett_interdependence-as-a-frame-for-assistive-technology-design-and-research.pdf Type: application/pdf Size: 460036 bytes Desc: not available URL: From cbennet2 at andrew.cmu.edu Fri Feb 19 16:09:31 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Fri, 19 Feb 2021 21:09:31 +0000 Subject: [Access Lunch] **NEW MEETING LINK*** Reading for Thursday Feb 25 Message-ID: Hi Everyone, Breanna did such an awesome job getting next week?s reading out early that I didn?t have a chance to share our new seminar link with her. **Please take note; we will meet here from now on! https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Now resumes a copy of Breanna?s message with this week?s readings. Hi everyone, This week, we'll chat about interdependence, access intimacy, and forced intimacy. I'd like to share several blog posts from Mia Mingus and A.H Reaume for this week's reading. Thanks to Cindy for helping me curate this list! Here are the readings for this week: * Mia Mingus's speaking excerpts on interdependence * https://leavingevidence.wordpress.com/2010/01/22/interdependency-exerpts-from-several-talks/ * A blog post by A.H Reaume on interdependence (also featured in Disability Visibility!) * http://open-book.ca/Columnists/Interdependence-as-Disabled-Poetics-and-Praxis-Or-Why-My-Novel-is-Dedicated-to-My-Disabled-Friend-Maddy * A blog post by Mia Mingus on access intimacy * https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/ * A blog post by Mia Mingus on forced intimacy * https://leavingevidence.wordpress.com/2017/08/06/forced-intimacy-an-ableist-norm/ If you're interested in reading more in the future, I've attached three readings on interdependence in assistive technology contexts. I'd also suggest this talk from Mia Mingus as further reading. I'm so looking forward to our discussion! I've really enjoyed being a part of this reading group and getting to know you all. :) We welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. Join the Accessibility Lunch email list here to ensure that you receive future announcements. All the best, Bre -- Breanna Baltaxe-Admony PhD Student | Graduate Community Manager Computational Media University of California Santa Cruz -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Feb 25 13:08:51 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 25 Feb 2021 18:08:51 +0000 Subject: [Access Lunch] Happening today: **NEW MEETING LINK*** Reading for Thursday Feb 25 In-Reply-To: References: Message-ID: <881A20ED-43BC-444D-A2CB-86DAAB67C3DC@andrew.cmu.edu> Hi Everyone, Breanna did such an awesome job getting next week?s reading out early that I didn?t have a chance to share our new seminar link with her. **Please take note; we will meet here from now on! https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Now resumes a copy of Breanna?s message with this week?s readings. Hi everyone, This week, we'll chat about interdependence, access intimacy, and forced intimacy. I'd like to share several blog posts from Mia Mingus and A.H Reaume for this week's reading. Thanks to Cindy for helping me curate this list! Here are the readings for this week: * Mia Mingus's speaking excerpts on interdependence * https://leavingevidence.wordpress.com/2010/01/22/interdependency-exerpts-from-several-talks/ * A blog post by A.H Reaume on interdependence (also featured in Disability Visibility!) * http://open-book.ca/Columnists/Interdependence-as-Disabled-Poetics-and-Praxis-Or-Why-My-Novel-is-Dedicated-to-My-Disabled-Friend-Maddy * A blog post by Mia Mingus on access intimacy * https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/ * A blog post by Mia Mingus on forced intimacy * https://leavingevidence.wordpress.com/2017/08/06/forced-intimacy-an-ableist-norm/ If you're interested in reading more in the future, I've attached three readings on interdependence in assistive technology contexts. I'd also suggest this talk from Mia Mingus as further reading. I'm so looking forward to our discussion! I've really enjoyed being a part of this reading group and getting to know you all. :) We welcome this message to be shared outside of HCII with anyone interested in accessibility, disability, and technology, but please do not post the Zoom link publicly. Join the Accessibility Lunch email list here to ensure that you receive future announcements. All the best, Bre -- Breanna Baltaxe-Admony PhD Student | Graduate Community Manager Computational Media University of California Santa Cruz _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Tue Mar 2 15:50:05 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Tue, 2 Mar 2021 20:50:05 +0000 Subject: [Access Lunch] Readings for this week. *Note Our New Meeting Link Message-ID: <8052b4b5e9ce423c91ebc83d6fe98ec0@andrew.cmu.edu> Hi Everyone, I am so sorry this is late coming. This week, we'll continue our discussion about communication by watching and listening to 2 recent offerings from alternative communicators comprising autistic people who do not speak at all or who speak sometimes. Specifics about the videos we will watch, instead of doing readings, are below the join information. * When: Thursday, march 4 from 1:30 to 2:30 PM Eastern Time. * Where: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 * Who: We welcome you to invite your colleagues outside CMU, but please do not share this link publicly. We have two videos for this week. First, this short film called Listen was released as a response to the recently-released movie, Music. A Google search will educate you on the problems autistic people have found with the film and popstar Sia who directed it. But this film offers a response centering nonspeaking and sometimes-speaking autistic people. The website also includes a transcript of the video if you prefer to engage in that way. Second, this panel of autistic people offers a bit more information about communication preferences, philosophy of communication, and advocacy in the area. You may change the watch speed of this 90 minute video. I understand this is coming late so please engage with the materials as you can. We would love folks to offer to choose a reading one week during the semester. Please let me know when you'd like to present. Thanks and see you soon, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Thu Mar 4 08:14:13 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 4 Mar 2021 13:14:13 +0000 Subject: [Access Lunch] Happening today: Readings for this week. *Note Our New Meeting Link Message-ID: <923418FA-53B3-47AA-AB5B-A04E403A0E22@andrew.cmu.edu> ? Hi Everyone, I am so sorry this is late coming. This week, we?ll continue our discussion about communication by watching and listening to 2 recent offerings from alternative communicators comprising autistic people who do not speak at all or who speak sometimes. Specifics about the videos we will watch, instead of doing readings, are below the join information. * When: Thursday, march 4 from 1:30 to 2:30 PM Eastern Time. * Where: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 * Who: We welcome you to invite your colleagues outside CMU, but please do not share this link publicly. We have two videos for this week. First, this short film called Listen was released as a response to the recently-released movie, Music. A Google search will educate you on the problems autistic people have found with the film and popstar Sia who directed it. But this film offers a response centering nonspeaking and sometimes-speaking autistic people. The website also includes a transcript of the video if you prefer to engage in that way. Second, this panel of autistic people offers a bit more information about communication preferences, philosophy of communication, and advocacy in the area. You may change the watch speed of this 90 minute video. I understand this is coming late so please engage with the materials as you can. We would love folks to offer to choose a reading one week during the semester. Please let me know when you?d like to present. Thanks and see you soon, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar _______________________________________________ Accessibility-lunch mailing list Accessibility-lunch at lists.andrew.cmu.edu https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch -------------- next part -------------- An HTML attachment was scrubbed... URL: From cbennet2 at andrew.cmu.edu Sun Mar 7 21:56:05 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 8 Mar 2021 02:56:05 +0000 Subject: [Access Lunch] Reading for this Week Message-ID: Hi Everyone, This week, we?ll switch gears a bit and talk about VR accessibility for people with motor disabilities. The paper is attached. As a reminder, Accessibility Lunch is: * When: Thursday, march 11 from 1:30 to 2:30 PM Eastern Time. * Where: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 * Who: We welcome you to invite your colleagues outside CMU, but please do not share this link publicly. We would love folks to choose a reading one week during the semester. Please let me know when you?d like to present. Thanks and see you soon, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Mott_I just went into it assuming that I wouldn?t be able to have the full experience Understanding the accessibility of virtual reality for people with limited mobility.pdf Type: application/pdf Size: 805844 bytes Desc: Mott_I just went into it assuming that I wouldn?t be able to have the full experience Understanding the accessibility of virtual reality for people with limited mobility.pdf URL: From cbennet2 at andrew.cmu.edu Mon Mar 15 09:17:10 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Mon, 15 Mar 2021 13:17:10 +0000 Subject: [Access Lunch] Reading for this Week Message-ID: ? Hi Everyone, I didn?t realize there was a conference last week, Human Robot Interaction, that meant a lot of people couldn?t make it. So we?ll do the same reading that I assigned last week because I think it?s very relevant particularly for the people who had to miss last week. This week, we?ll talk about VR accessibility for people with motor disabilities. The paper is attached. As a reminder, Accessibility Lunch is: * When: Thursday, march 18 from 1:30 to 2:30 PM Eastern Time. * Where: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 * Who: We welcome you to invite your colleagues outside CMU, but please do not share this link publicly. We would love folks to choose a reading one week during the semester. Please let me know when you?d like to present. Thanks and see you soon, Cynthia L. Bennett Pronouns: she/her Twitter LinkedIn Google Scholar -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Mott_I just went into it assuming that I wouldn?t be able to have the full experience Understanding the accessibility of virtual reality for people with limited mobility.pdf Type: application/pdf Size: 805844 bytes Desc: Mott_I just went into it assuming that I wouldn?t be able to have the full experience Understanding the accessibility of virtual reality for people with limited mobility.pdf URL: From skingsle at cs.cmu.edu Mon Mar 22 14:59:41 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Mon, 22 Mar 2021 13:59:41 -0500 Subject: [Access Lunch] Reading for this Week Message-ID: Hi everyone, Please find the reading for this week attached, the paper is, "Invisibility in Disability and Assistive Technology." The article discusses the roles of visibility and stigma and assistive technology. A few motivating questions for the discussion are below. *Questions:* - How should designers design assistive technology to help users keep their disability invisible? - Should designers create public awareness campaigns that address and attempt to combat stigma instead? Here, the idea is that addressing stigma could help alleviate challenges persons living with disabilities have when wearing or using assistive technology To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Meeting date: Thursday, March 25 Meeting Time: 1:30 pm EST Looking forward to our discussion on Thursday. Sara -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: invisibility_disability.pdf Type: application/pdf Size: 485826 bytes Desc: not available URL: From cbennet2 at andrew.cmu.edu Thu Mar 25 08:50:25 2021 From: cbennet2 at andrew.cmu.edu (Cynthia Bennett) Date: Thu, 25 Mar 2021 12:50:25 +0000 Subject: [Access Lunch] Happening Today: Reading for this Week Message-ID: From: Accessibility-lunch On Behalf Of Sara Kingsley Sent: Monday, March 22, 2021 3:00 PM To: accessibility-lunch at lists.andrew.cmu.edu Subject: [Access Lunch] Reading for this Week Hi everyone, Please find the reading for this week attached, the paper is, "Invisibility in Disability and Assistive Technology." The article discusses the roles of visibility and stigma and assistive technology. A few motivating questions for the discussion are below. Questions: * How should designers design assistive technology to help users keep their disability invisible? * Should designers create public awareness campaigns that address and attempt to combat stigma instead? Here, the idea is that addressing stigma could help alleviate challenges persons living with disabilities have when wearing or using assistive technology To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Meeting date: Thursday, March 25 Meeting Time: 1:30 pm EST Looking forward to our discussion on Thursday. Sara -- Sara Kingsley PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info want to chat about research, projects or coursework? please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From skingsle at cs.cmu.edu Thu Mar 25 10:50:36 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Thu, 25 Mar 2021 10:50:36 -0400 Subject: [Access Lunch] Happening Today: Reading for this Week In-Reply-To: References: Message-ID: Thank you so much for sharing Aaron, I really appreciated the read On Thu, Mar 25, 2021 at 9:11 AM Aaron Steinfeld wrote: > I have conflicts today, but this short article my wife wrote a while back > may be of interest for the topic of invisible disabilities. Most people > don't realize she is deaf because her hair hides her cochlear implant and > hearing aid. Her deaf accent is light enough that some people assume she's > from another country. Things changed when she used a wheelchair for a while. > > Wheelchair opens up new world > by Lisa A. Goldstein > October 5, 2000 > http://web.archive.org/web/20010219050849/www.progressive.org/mpvdgo00.htm > > Thanks, > Aaron > > On Thu, Mar 25, 2021 at 8:50 AM Cynthia Bennett > wrote: > >> *From:* Accessibility-lunch > andrew.cmu.edu at lists.andrew.cmu.edu> *On Behalf Of *Sara Kingsley >> *Sent:* Monday, March 22, 2021 3:00 PM >> *To:* accessibility-lunch at lists.andrew.cmu.edu >> *Subject:* [Access Lunch] Reading for this Week >> >> >> >> Hi everyone, >> >> >> >> Please find the reading for this week attached, the paper is, >> "Invisibility in Disability and Assistive Technology." >> >> >> >> The article discusses the roles of visibility and stigma and assistive >> technology. >> >> >> >> A few motivating questions for the discussion are below. >> >> >> >> *Questions:* >> >> - How should designers design assistive technology to help users keep >> their disability invisible? >> - Should designers create public awareness campaigns that address and >> attempt to combat stigma instead? Here, the idea is that addressing stigma >> could help alleviate challenges persons living with disabilities have when >> wearing or using assistive technology >> >> >> >> To access the meeting, please use this Zoom conference link: >> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >> >> >> >> Meeting date: Thursday, March 25 >> >> Meeting Time: 1:30 pm EST >> >> >> >> Looking forward to our discussion on Thursday. >> >> >> >> Sara >> >> >> -- >> >> *Sara Kingsley* >> >> PhD student, Human-Computer Interaction Institute >> >> School of Computer Science >> >> Carnegie Mellon University >> >> Pittsburgh, PA, USA >> >> website: www.sarakingsley.info >> >> >> >> *want to chat about research, projects or coursework?* >> >> please feel free to schedule time to meet with me at this link, thank >> you: https://calendly.com/sarakingsley/sara-schedule >> >> >> >> _______________________________________________ >> Accessibility-lunch mailing list >> Accessibility-lunch at lists.andrew.cmu.edu >> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >> > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From fspektor at andrew.cmu.edu Mon Mar 29 18:33:15 2021 From: fspektor at andrew.cmu.edu (Franchesca Spektor) Date: Mon, 29 Mar 2021 15:33:15 -0700 Subject: [Access Lunch] Reading for this Week Message-ID: Hi everyone, For this week's reading, we'll explore the cyborg as the supposed "pinnacle" of assistive technology. Can cyborg technology eliminate disability? Who can afford to become a cyborg? How do these questions come to influence products and policy? These first two essays discuss the frictions of cyborg embodiment, from the lived experience of disability: - "Common Cyborg" by Jillian Weise, a poet, performance artist, and activist. (I've shared this essay before but I just love it so much). - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and design researcher. If you have time for it, this last essay is a short Vice article from several years ago, which argues that the US should invest into exoskeletons rather than accessible environments. - "In the Transhumanist Age, We Should be Repairing Disabilities, Not Sidewalks" by Zoltan Istvan, an attempted politician and president of the Transhumanist Party. I'm really looking forward to our discussion and hearing everyone's thoughts! *As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 PM EST here. *To access the meeting, please use this Zoom conference link: https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 Thanks so much, and see y'all soon ~ - Franky -------------- next part -------------- An HTML attachment was scrubbed... URL: From skingsle at cs.cmu.edu Mon Mar 29 19:05:38 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Mon, 29 Mar 2021 19:05:38 -0400 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Hi everyone, I request that we not refer to everyone living with medical assistive technology as a "cyborg." For many of us, it is extraordinarily derogatory, ableist, and those terms have been used by non-disabled people to harass and commit acts of violence against disabled people. I also ask that we consider reading about the history of diabetes technology, the broader community whose lives depend on it before engaging in a discussion of type 1 diabetes. Thank you, Sara On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor wrote: > Hi everyone, > > For this week's reading, we'll explore the cyborg as the supposed > "pinnacle" of assistive technology. Can cyborg technology eliminate > disability? Who can afford to become a cyborg? How do these questions come > to influence products and policy? > > These first two essays discuss the frictions of cyborg embodiment, from > the lived experience of disability: > > - "Common Cyborg" by Jillian > Weise, a poet, performance artist, and activist. (I've shared this essay > before but I just love it so much). > - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and > design researcher. > > If you have time for it, this last essay is a short Vice article from > several years ago, which argues that the US should invest into exoskeletons > rather than accessible environments. > > - "In the Transhumanist Age, We Should be Repairing Disabilities, Not > Sidewalks" > > by Zoltan Istvan, an attempted politician and president of the > Transhumanist Party. > > I'm really looking forward to our discussion and hearing everyone's > thoughts! > > *As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 > PM EST here. *To access the meeting, please use this Zoom conference > link: > https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 > > Thanks so much, and see y'all soon ~ > > - Franky > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her Create Safe Spaces for Students, Denounce Ableist Language: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From steinfeld at cmu.edu Thu Mar 25 09:11:20 2021 From: steinfeld at cmu.edu (Aaron Steinfeld) Date: Thu, 25 Mar 2021 09:11:20 -0400 Subject: [Access Lunch] Happening Today: Reading for this Week In-Reply-To: References: Message-ID: I have conflicts today, but this short article my wife wrote a while back may be of interest for the topic of invisible disabilities. Most people don't realize she is deaf because her hair hides her cochlear implant and hearing aid. Her deaf accent is light enough that some people assume she's from another country. Things changed when she used a wheelchair for a while. Wheelchair opens up new world by Lisa A. Goldstein October 5, 2000 http://web.archive.org/web/20010219050849/www.progressive.org/mpvdgo00.htm Thanks, Aaron On Thu, Mar 25, 2021 at 8:50 AM Cynthia Bennett wrote: > *From:* Accessibility-lunch andrew.cmu.edu at lists.andrew.cmu.edu> *On Behalf Of *Sara Kingsley > *Sent:* Monday, March 22, 2021 3:00 PM > *To:* accessibility-lunch at lists.andrew.cmu.edu > *Subject:* [Access Lunch] Reading for this Week > > > > Hi everyone, > > > > Please find the reading for this week attached, the paper is, > "Invisibility in Disability and Assistive Technology." > > > > The article discusses the roles of visibility and stigma and assistive > technology. > > > > A few motivating questions for the discussion are below. > > > > *Questions:* > > - How should designers design assistive technology to help users keep > their disability invisible? > - Should designers create public awareness campaigns that address and > attempt to combat stigma instead? Here, the idea is that addressing stigma > could help alleviate challenges persons living with disabilities have when > wearing or using assistive technology > > > > To access the meeting, please use this Zoom conference link: > https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 > > > > Meeting date: Thursday, March 25 > > Meeting Time: 1:30 pm EST > > > > Looking forward to our discussion on Thursday. > > > > Sara > > > -- > > *Sara Kingsley* > > PhD student, Human-Computer Interaction Institute > > School of Computer Science > > Carnegie Mellon University > > Pittsburgh, PA, USA > > website: www.sarakingsley.info > > > > *want to chat about research, projects or coursework?* > > please feel free to schedule time to meet with me at this link, thank you: > https://calendly.com/sarakingsley/sara-schedule > > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -------------- next part -------------- An HTML attachment was scrubbed... URL: From fspektor at andrew.cmu.edu Wed Mar 31 11:56:18 2021 From: fspektor at andrew.cmu.edu (Franchesca Spektor) Date: Wed, 31 Mar 2021 08:56:18 -0700 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Sara, thank you for sharing this important perspective. I apologize that I did not use the term ?cyborg? with the care that it necessitates when introducing readings that take up controversial language. To respond to your message, I did some research on the ways ?cyborg? has been used to describe people with disabilities. As you mentioned, the term has been used to reduce people with disabilities into the ways they are enabled by technology. These reductions, along with the term?s propensity in science fiction, feed stereotypes that technology may ?fix? disability and that people with disabilities are subhuman, in particular, lacking warmth and human complexity. For others, like me, who could use more education on the topic, here are some resources I found that nuance the potential harms and limitations of reclaiming cyborg terminology. Importantly, this discussion is complex and ongoing and some disabled activists have made clear that cyborg is not a term nondisabled people should use in reference to people with disabilities. - Cyborgs, Cripples and iCrip: Reflections on the Contribution of Haraway to Disability Studies by Donna Reeve talks about why the cyborg figure hasn't been more utilized in disability studies. - The Cyborg and the Crip chapter in Feminist, Queer, Crip by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of pure/impure, natural/unnatural, natural/technological; rather than breaking down boundaries, it buttresses them" (109). - The intro of Building the Normal Body: Disability and the Techno-makeover by Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been traditionally ableist, from Haraway to Chris Hables Gray to John Hockenberry. - The Dawn of the 'Tryborg' by Jillian Weise, where she argues only disabled people should call themselves cyborgs since only disabled people depend on integrated technology. These different essays, perspectives, and bits of lineage are so important, and I hope we can continue discussing this nuance as a group. For instance, while Jillian Wiese uses a bionic leg and strongly identifies with the term cyborg, Laura Forlano, who uses an automatic insulin pump for type 1 diabetes does not. In both of their firsthand testimony, these authors detail the labor it requires to make their assistive technology work. I recognize that Zoltan Istvan?s controversial article is a troubling counterpoint to their perspectives, as it is 1) a blatant misunderstanding of the capacity of assistive tech, and 2) an insidious ideology that has influenced policy. In pairing it with Wiese and Forlano, I was hoping to draw out this historical tension between techno-solutionism and disability rights in our Thursday discussion. I apologize for not initially characterizing the harm perpetuated by Zoltan?s ideology -- especially as it concerns the term ?cyborg.? On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley wrote: > Hi everyone, > > I request that we not refer to everyone living with medical assistive > technology as a "cyborg." For many of us, it is extraordinarily derogatory, > ableist, and those terms have been used by non-disabled people to harass > and commit acts of violence against disabled people. I also ask that we > consider reading about the history of diabetes technology, the broader > community whose lives depend on it before engaging in a discussion of type > 1 diabetes. > > Thank you, Sara > > > > > > On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor < > fspektor at andrew.cmu.edu> wrote: > >> Hi everyone, >> >> For this week's reading, we'll explore the cyborg as the supposed >> "pinnacle" of assistive technology. Can cyborg technology eliminate >> disability? Who can afford to become a cyborg? How do these questions come >> to influence products and policy? >> >> These first two essays discuss the frictions of cyborg embodiment, from >> the lived experience of disability: >> >> - "Common Cyborg" by Jillian >> Weise, a poet, performance artist, and activist. (I've shared this essay >> before but I just love it so much). >> - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar and >> design researcher. >> >> If you have time for it, this last essay is a short Vice article from >> several years ago, which argues that the US should invest into exoskeletons >> rather than accessible environments. >> >> - "In the Transhumanist Age, We Should be Repairing Disabilities, Not >> Sidewalks" >> >> by Zoltan Istvan, an attempted politician and president of the >> Transhumanist Party. >> >> I'm really looking forward to our discussion and hearing everyone's >> thoughts! >> >> *As always, join us at Accessibility Lunch on Thursday, April 1st at 1:30 >> PM EST here. *To access the meeting, please use this Zoom conference >> link: >> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >> >> Thanks so much, and see y'all soon ~ >> >> - Franky >> >> >> _______________________________________________ >> Accessibility-lunch mailing list >> Accessibility-lunch at lists.andrew.cmu.edu >> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >> > > > -- > *Sara Kingsley* > PhD student, Human-Computer Interaction Institute > School of Computer Science > Carnegie Mellon University > Pittsburgh, PA, USA > website: www.sarakingsley.info > Pronouns: she/her > Create Safe Spaces for Students, Denounce Ableist Language: > https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html > > *want to chat about research, projects or coursework?* > please feel free to schedule time to meet with me at this link, thank you: > https://calendly.com/sarakingsley/sara-schedule > > > -------------- next part -------------- An HTML attachment was scrubbed... URL: From steinfeld at cmu.edu Wed Mar 31 12:16:32 2021 From: steinfeld at cmu.edu (Aaron Steinfeld) Date: Wed, 31 Mar 2021 12:16:32 -0400 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Michael Chorost goes into pretty deep detail on the terms cyborg, fyborg, etc in his book about getting a cochlear implant. The book is titled "Rebuilt", which is a pretty large clue on how he views such technology. He's a tech writer, so he obviously comes at this from a technophile direction. https://michaelchorost.com/ Aaron On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor wrote: > Sara, thank you for sharing this important perspective. > > I apologize that I did not use the term ?cyborg? with the care that it > necessitates when introducing readings that take up controversial language. > To respond to your message, I did some research on the ways ?cyborg? has > been used to describe people with disabilities. As you mentioned, the term > has been used to reduce people with disabilities into the ways they are > enabled by technology. These reductions, along with the term?s propensity > in science fiction, feed stereotypes that technology may ?fix? disability > and that people with disabilities are subhuman, in particular, lacking > warmth and human complexity. > > For others, like me, who could use more education on the topic, here are > some resources I found that nuance the potential harms and limitations of > reclaiming cyborg terminology. Importantly, this discussion is complex and > ongoing and some disabled activists have made clear that cyborg is not a > term nondisabled people should use in reference to people with disabilities. > > - Cyborgs, Cripples and iCrip: Reflections on the Contribution of > Haraway to Disability Studies > by Donna > Reeve talks about why the cyborg figure hasn't been more utilized in > disability studies. > - The Cyborg and the Crip chapter in Feminist, Queer, Crip > > by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg > Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of > pure/impure, natural/unnatural, natural/technological; rather than breaking > down boundaries, it buttresses them" (109). > - The intro of Building the Normal Body: Disability and the > Techno-makeover by > Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been > traditionally ableist, from Haraway to Chris Hables Gray to John > Hockenberry. > - The Dawn of the 'Tryborg' > > by Jillian Weise, where she argues only disabled people should call > themselves cyborgs since only disabled people depend on integrated > technology. > > These different essays, perspectives, and bits of lineage are so > important, and I hope we can continue discussing this nuance as a group. > For instance, while Jillian Wiese uses a bionic leg and strongly identifies > with the term cyborg, Laura Forlano, who uses an automatic insulin pump for > type 1 diabetes does not. In both of their firsthand testimony, these > authors detail the labor it requires to make their assistive technology > work. I recognize that Zoltan Istvan?s controversial article is a troubling > counterpoint to their perspectives, as it is 1) a blatant misunderstanding > of the capacity of assistive tech, and 2) an insidious ideology that has > influenced policy. In pairing it with Wiese and Forlano, I was hoping to > draw out this historical tension between techno-solutionism and disability > rights in our Thursday discussion. I apologize for not initially > characterizing the harm perpetuated by Zoltan?s ideology -- especially as > it concerns the term ?cyborg.? > > On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley wrote: > >> Hi everyone, >> >> I request that we not refer to everyone living with medical assistive >> technology as a "cyborg." For many of us, it is extraordinarily derogatory, >> ableist, and those terms have been used by non-disabled people to harass >> and commit acts of violence against disabled people. I also ask that we >> consider reading about the history of diabetes technology, the broader >> community whose lives depend on it before engaging in a discussion of type >> 1 diabetes. >> >> Thank you, Sara >> >> >> >> >> >> On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor < >> fspektor at andrew.cmu.edu> wrote: >> >>> Hi everyone, >>> >>> For this week's reading, we'll explore the cyborg as the supposed >>> "pinnacle" of assistive technology. Can cyborg technology eliminate >>> disability? Who can afford to become a cyborg? How do these questions come >>> to influence products and policy? >>> >>> These first two essays discuss the frictions of cyborg embodiment, from >>> the lived experience of disability: >>> >>> - "Common Cyborg" by Jillian >>> Weise, a poet, performance artist, and activist. (I've shared this essay >>> before but I just love it so much). >>> - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar >>> and design researcher. >>> >>> If you have time for it, this last essay is a short Vice article from >>> several years ago, which argues that the US should invest into exoskeletons >>> rather than accessible environments. >>> >>> - "In the Transhumanist Age, We Should be Repairing Disabilities, >>> Not Sidewalks" >>> >>> by Zoltan Istvan, an attempted politician and president of the >>> Transhumanist Party. >>> >>> I'm really looking forward to our discussion and hearing everyone's >>> thoughts! >>> >>> *As always, join us at Accessibility Lunch on Thursday, April 1st at >>> 1:30 PM EST here. *To access the meeting, please use this Zoom >>> conference link: >>> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >>> >>> Thanks so much, and see y'all soon ~ >>> >>> - Franky >>> >>> >>> _______________________________________________ >>> Accessibility-lunch mailing list >>> Accessibility-lunch at lists.andrew.cmu.edu >>> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>> >> >> >> -- >> *Sara Kingsley* >> PhD student, Human-Computer Interaction Institute >> School of Computer Science >> Carnegie Mellon University >> Pittsburgh, PA, USA >> website: www.sarakingsley.info >> Pronouns: she/her >> Create Safe Spaces for Students, Denounce Ableist Language: >> https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html >> >> *want to chat about research, projects or coursework?* >> please feel free to schedule time to meet with me at this link, thank >> you: https://calendly.com/sarakingsley/sara-schedule >> >> >> _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -------------- next part -------------- An HTML attachment was scrubbed... URL: From skingsle at cs.cmu.edu Wed Mar 31 13:15:15 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Wed, 31 Mar 2021 13:15:15 -0400 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Franky, I really appreciate the time and care you've clearly put into crafting this note. I appreciate the additional context about Wiese and Forlano. At a future date, if you still have interest, I would be happy to share what I know of our use of artificial pancreases. It's a complicated history that is rapidly evolving, and one that is not a part of the techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very anarchic/autonomous crowd in terms of perspectives). Only until recently, many people were not permitted to use an artificial pancreas unless the management of their type 1 diabetes was at a state that it was considered the medicine or tool of second to last resort. With advances in technology, form factors, and machine learning (to my own surprise AI does sometimes save lives, though it has killed us too), and how those developments have interacted with major policy changes (Affordable Care Act) and pricing/economics, the model of care has changed to one of choice, eg, use the tech that works best for you. Our community continues to very hotly debate the use of language. For example, a lot of us are trained by medical professionals from a very early age to use person-first language. This is partly because studies indicate that young children thrive better with T1D when their personhood is centered (happy to provide readings about this upon request). We are also, some of us, subjected to harassment about our assistive technology. For example, I lost my high school education to bullying, violence against my artificial organ (having it ripped out), and being called similar terms as cyborg. Not all of us, thankfully, have had those experiences, but we are statistically or systematically excluded from educational institutions (linked readings are below). While a fair number of us do refer to ourselves by a range of terms, as you mentioned, it is not appropriate to refer to our demographic that way or any individual member of our community. These are our organs, we do not have the privilege to wear them on the inside anymore because the internal ones "died" (they still work for other things such as digestion but some of us say our pancreas is dead). I really appreciate you and this note. I've not really had a critical mass of T1Ds in any space I've had to survive. I'd imagine I'm not the only one here, but not sure what their preferences are. Either way, it really takes allies and a community speaking up and working with us to make sure we can exist everywhere, in any space, and that our lives are equal in economic opportunity and dignity. Article about school exclusion: https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html Department of Justice on the exclusion of Type 1 diabetics in school: https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes Here is article about ableist language, though we could perhaps benefit from creating comprehensive HCI Guidelines, I defer to the experts in the crowd on that: https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html Thank you, Sara On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor wrote: > Sara, thank you for sharing this important perspective. > > I apologize that I did not use the term ?cyborg? with the care that it > necessitates when introducing readings that take up controversial language. > To respond to your message, I did some research on the ways ?cyborg? has > been used to describe people with disabilities. As you mentioned, the term > has been used to reduce people with disabilities into the ways they are > enabled by technology. These reductions, along with the term?s propensity > in science fiction, feed stereotypes that technology may ?fix? disability > and that people with disabilities are subhuman, in particular, lacking > warmth and human complexity. > > For others, like me, who could use more education on the topic, here are > some resources I found that nuance the potential harms and limitations of > reclaiming cyborg terminology. Importantly, this discussion is complex and > ongoing and some disabled activists have made clear that cyborg is not a > term nondisabled people should use in reference to people with disabilities. > > - Cyborgs, Cripples and iCrip: Reflections on the Contribution of > Haraway to Disability Studies > by Donna > Reeve talks about why the cyborg figure hasn't been more utilized in > disability studies. > - The Cyborg and the Crip chapter in Feminist, Queer, Crip > > by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg > Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of > pure/impure, natural/unnatural, natural/technological; rather than breaking > down boundaries, it buttresses them" (109). > - The intro of Building the Normal Body: Disability and the > Techno-makeover by > Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been > traditionally ableist, from Haraway to Chris Hables Gray to John > Hockenberry. > - The Dawn of the 'Tryborg' > > by Jillian Weise, where she argues only disabled people should call > themselves cyborgs since only disabled people depend on integrated > technology. > > These different essays, perspectives, and bits of lineage are so > important, and I hope we can continue discussing this nuance as a group. > For instance, while Jillian Wiese uses a bionic leg and strongly identifies > with the term cyborg, Laura Forlano, who uses an automatic insulin pump for > type 1 diabetes does not. In both of their firsthand testimony, these > authors detail the labor it requires to make their assistive technology > work. I recognize that Zoltan Istvan?s controversial article is a troubling > counterpoint to their perspectives, as it is 1) a blatant misunderstanding > of the capacity of assistive tech, and 2) an insidious ideology that has > influenced policy. In pairing it with Wiese and Forlano, I was hoping to > draw out this historical tension between techno-solutionism and disability > rights in our Thursday discussion. I apologize for not initially > characterizing the harm perpetuated by Zoltan?s ideology -- especially as > it concerns the term ?cyborg.? > > On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley wrote: > >> Hi everyone, >> >> I request that we not refer to everyone living with medical assistive >> technology as a "cyborg." For many of us, it is extraordinarily derogatory, >> ableist, and those terms have been used by non-disabled people to harass >> and commit acts of violence against disabled people. I also ask that we >> consider reading about the history of diabetes technology, the broader >> community whose lives depend on it before engaging in a discussion of type >> 1 diabetes. >> >> Thank you, Sara >> >> >> >> >> >> On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor < >> fspektor at andrew.cmu.edu> wrote: >> >>> Hi everyone, >>> >>> For this week's reading, we'll explore the cyborg as the supposed >>> "pinnacle" of assistive technology. Can cyborg technology eliminate >>> disability? Who can afford to become a cyborg? How do these questions come >>> to influence products and policy? >>> >>> These first two essays discuss the frictions of cyborg embodiment, from >>> the lived experience of disability: >>> >>> - "Common Cyborg" by Jillian >>> Weise, a poet, performance artist, and activist. (I've shared this essay >>> before but I just love it so much). >>> - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar >>> and design researcher. >>> >>> If you have time for it, this last essay is a short Vice article from >>> several years ago, which argues that the US should invest into exoskeletons >>> rather than accessible environments. >>> >>> - "In the Transhumanist Age, We Should be Repairing Disabilities, >>> Not Sidewalks" >>> >>> by Zoltan Istvan, an attempted politician and president of the >>> Transhumanist Party. >>> >>> I'm really looking forward to our discussion and hearing everyone's >>> thoughts! >>> >>> *As always, join us at Accessibility Lunch on Thursday, April 1st at >>> 1:30 PM EST here. *To access the meeting, please use this Zoom >>> conference link: >>> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >>> >>> Thanks so much, and see y'all soon ~ >>> >>> - Franky >>> >>> >>> _______________________________________________ >>> Accessibility-lunch mailing list >>> Accessibility-lunch at lists.andrew.cmu.edu >>> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>> >> >> >> -- >> *Sara Kingsley* >> PhD student, Human-Computer Interaction Institute >> School of Computer Science >> Carnegie Mellon University >> Pittsburgh, PA, USA >> website: www.sarakingsley.info >> Pronouns: she/her >> Create Safe Spaces for Students, Denounce Ableist Language: >> https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html >> >> *want to chat about research, projects or coursework?* >> please feel free to schedule time to meet with me at this link, thank >> you: https://calendly.com/sarakingsley/sara-schedule >> >> >> -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From skingsle at cs.cmu.edu Wed Mar 31 13:27:53 2021 From: skingsle at cs.cmu.edu (Sara Kingsley) Date: Wed, 31 Mar 2021 13:27:53 -0400 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Post-note. I should have emphasized that the model regarding artificial pancreas decisions is not quite one of choice due to structural racism. Black and Hispanic people living with T1D do not have equal access to technology or medical care due to the structural racism of the United States. References: [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4533245/ [2] https://www.healio.com/news/endocrinology/20201231/black-young-adults-with-type-1-diabetes-less-likely-to-use-cgm-insulin-pump On Wed, Mar 31, 2021 at 1:15 PM Sara Kingsley wrote: > Franky, > > I really appreciate the time and care you've clearly put into crafting > this note. I appreciate the additional context about Wiese and Forlano. At > a future date, if you still have interest, I would be happy to share what I > know of our use of artificial pancreases. It's a complicated history that > is rapidly evolving, and one that is not a part of the > techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very > anarchic/autonomous crowd in terms of perspectives). Only until recently, > many people were not permitted to use an artificial pancreas unless the > management of their type 1 diabetes was at a state that it was considered > the medicine or tool of second to last resort. With advances in technology, > form factors, and machine learning (to my own surprise AI does sometimes > save lives, though it has killed us too), and how those developments have > interacted with major policy changes (Affordable Care Act) and > pricing/economics, the model of care has changed to one of choice, eg, use > the tech that works best for you. > > Our community continues to very hotly debate the use of language. For > example, a lot of us are trained by medical professionals from a very early > age to use person-first language. This is partly because studies indicate > that young children thrive better with T1D when their personhood is > centered (happy to provide readings about this upon request). We are > also, some of us, subjected to harassment about our assistive technology. > For example, I lost my high school education to bullying, violence against > my artificial organ (having it ripped out), and being called similar terms > as cyborg. Not all of us, thankfully, have had those experiences, but we > are statistically or systematically excluded from educational institutions > (linked readings are below). While a fair number of us do refer to > ourselves by a range of terms, as you mentioned, it is not appropriate to > refer to our demographic that way or any individual member of our > community. These are our organs, we do not have the privilege to wear them > on the inside anymore because the internal ones "died" (they still work for > other things such as digestion but some of us say our pancreas is dead). > > I really appreciate you and this note. I've not really had a critical mass > of T1Ds in any space I've had to survive. I'd imagine I'm not the only one > here, but not sure what their preferences are. Either way, it really takes > allies and a community speaking up and working with us to make sure we can > exist everywhere, in any space, and that our lives are equal in economic > opportunity and dignity. > > Article about school exclusion: > https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html > > Department of Justice on the exclusion of Type 1 diabetics in school: > https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes > > Here is article about ableist language, though we could perhaps benefit > from creating comprehensive HCI Guidelines, I defer to the experts in the > crowd on that: > https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html > > Thank you, Sara > > > > > > On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor < > fspektor at andrew.cmu.edu> wrote: > >> Sara, thank you for sharing this important perspective. >> >> I apologize that I did not use the term ?cyborg? with the care that it >> necessitates when introducing readings that take up controversial language. >> To respond to your message, I did some research on the ways ?cyborg? has >> been used to describe people with disabilities. As you mentioned, the term >> has been used to reduce people with disabilities into the ways they are >> enabled by technology. These reductions, along with the term?s propensity >> in science fiction, feed stereotypes that technology may ?fix? disability >> and that people with disabilities are subhuman, in particular, lacking >> warmth and human complexity. >> >> For others, like me, who could use more education on the topic, here are >> some resources I found that nuance the potential harms and limitations of >> reclaiming cyborg terminology. Importantly, this discussion is complex and >> ongoing and some disabled activists have made clear that cyborg is not a >> term nondisabled people should use in reference to people with disabilities. >> >> - Cyborgs, Cripples and iCrip: Reflections on the Contribution of >> Haraway to Disability Studies >> by Donna >> Reeve talks about why the cyborg figure hasn't been more utilized in >> disability studies. >> - The Cyborg and the Crip chapter in Feminist, Queer, Crip >> >> by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg >> Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of >> pure/impure, natural/unnatural, natural/technological; rather than breaking >> down boundaries, it buttresses them" (109). >> - The intro of Building the Normal Body: Disability and the >> Techno-makeover by >> Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been >> traditionally ableist, from Haraway to Chris Hables Gray to John >> Hockenberry. >> - The Dawn of the 'Tryborg' >> >> by Jillian Weise, where she argues only disabled people should call >> themselves cyborgs since only disabled people depend on integrated >> technology. >> >> These different essays, perspectives, and bits of lineage are so >> important, and I hope we can continue discussing this nuance as a group. >> For instance, while Jillian Wiese uses a bionic leg and strongly identifies >> with the term cyborg, Laura Forlano, who uses an automatic insulin pump for >> type 1 diabetes does not. In both of their firsthand testimony, these >> authors detail the labor it requires to make their assistive technology >> work. I recognize that Zoltan Istvan?s controversial article is a troubling >> counterpoint to their perspectives, as it is 1) a blatant misunderstanding >> of the capacity of assistive tech, and 2) an insidious ideology that has >> influenced policy. In pairing it with Wiese and Forlano, I was hoping to >> draw out this historical tension between techno-solutionism and disability >> rights in our Thursday discussion. I apologize for not initially >> characterizing the harm perpetuated by Zoltan?s ideology -- especially as >> it concerns the term ?cyborg.? >> >> On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley >> wrote: >> >>> Hi everyone, >>> >>> I request that we not refer to everyone living with medical assistive >>> technology as a "cyborg." For many of us, it is extraordinarily derogatory, >>> ableist, and those terms have been used by non-disabled people to harass >>> and commit acts of violence against disabled people. I also ask that we >>> consider reading about the history of diabetes technology, the broader >>> community whose lives depend on it before engaging in a discussion of type >>> 1 diabetes. >>> >>> Thank you, Sara >>> >>> >>> >>> >>> >>> On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor < >>> fspektor at andrew.cmu.edu> wrote: >>> >>>> Hi everyone, >>>> >>>> For this week's reading, we'll explore the cyborg as the supposed >>>> "pinnacle" of assistive technology. Can cyborg technology eliminate >>>> disability? Who can afford to become a cyborg? How do these questions come >>>> to influence products and policy? >>>> >>>> These first two essays discuss the frictions of cyborg embodiment, from >>>> the lived experience of disability: >>>> >>>> - "Common Cyborg" by Jillian >>>> Weise, a poet, performance artist, and activist. (I've shared this essay >>>> before but I just love it so much). >>>> - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar >>>> and design researcher. >>>> >>>> If you have time for it, this last essay is a short Vice article from >>>> several years ago, which argues that the US should invest into exoskeletons >>>> rather than accessible environments. >>>> >>>> - "In the Transhumanist Age, We Should be Repairing Disabilities, >>>> Not Sidewalks" >>>> >>>> by Zoltan Istvan, an attempted politician and president of the >>>> Transhumanist Party. >>>> >>>> I'm really looking forward to our discussion and hearing everyone's >>>> thoughts! >>>> >>>> *As always, join us at Accessibility Lunch on Thursday, April 1st at >>>> 1:30 PM EST here. *To access the meeting, please use this Zoom >>>> conference link: >>>> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >>>> >>>> Thanks so much, and see y'all soon ~ >>>> >>>> - Franky >>>> >>>> >>>> _______________________________________________ >>>> Accessibility-lunch mailing list >>>> Accessibility-lunch at lists.andrew.cmu.edu >>>> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>>> >>> >>> >>> -- >>> *Sara Kingsley* >>> PhD student, Human-Computer Interaction Institute >>> School of Computer Science >>> Carnegie Mellon University >>> Pittsburgh, PA, USA >>> website: www.sarakingsley.info >>> Pronouns: she/her >>> Create Safe Spaces for Students, Denounce Ableist Language: >>> https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html >>> >>> *want to chat about research, projects or coursework?* >>> please feel free to schedule time to meet with me at this link, thank >>> you: https://calendly.com/sarakingsley/sara-schedule >>> >>> >>> > > -- > *Sara Kingsley* > PhD student, Human-Computer Interaction Institute > School of Computer Science > Carnegie Mellon University > Pittsburgh, PA, USA > website: www.sarakingsley.info > Pronouns: she/her > > *want to chat about research, projects or coursework?* > please feel free to schedule time to meet with me at this link, thank you: > https://calendly.com/sarakingsley/sara-schedule > > > -- *Sara Kingsley* PhD student, Human-Computer Interaction Institute School of Computer Science Carnegie Mellon University Pittsburgh, PA, USA website: www.sarakingsley.info Pronouns: she/her *want to chat about research, projects or coursework?* please feel free to schedule time to meet with me at this link, thank you: https://calendly.com/sarakingsley/sara-schedule -------------- next part -------------- An HTML attachment was scrubbed... URL: From sreig at cs.cmu.edu Wed Mar 31 19:57:06 2021 From: sreig at cs.cmu.edu (Samantha Reig) Date: Wed, 31 Mar 2021 19:57:06 -0400 Subject: [Access Lunch] Reading for this Week In-Reply-To: References: Message-ID: Sara and I were discussing this a bit offline, and she shared with me a piece that's pertinent to this conversation. I'm passing it along with her permission: https://assistivetechjustice.medium.com/ableism-and-assistive-technology-926f4097a976 Best, Sam On Wed, Mar 31, 2021 at 1:28 PM Sara Kingsley wrote: > Post-note. I should have emphasized that the model regarding artificial > pancreas decisions is not quite one of choice due to structural racism. > Black and Hispanic people living with T1D do not have equal access to > technology or medical care due to the structural racism of the United > States. > References: > [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4533245/ > [2] > https://www.healio.com/news/endocrinology/20201231/black-young-adults-with-type-1-diabetes-less-likely-to-use-cgm-insulin-pump > > On Wed, Mar 31, 2021 at 1:15 PM Sara Kingsley wrote: > >> Franky, >> >> I really appreciate the time and care you've clearly put into crafting >> this note. I appreciate the additional context about Wiese and Forlano. At >> a future date, if you still have interest, I would be happy to share what I >> know of our use of artificial pancreases. It's a complicated history that >> is rapidly evolving, and one that is not a part of the >> techno-solutionism issue, to my knowledge (though T1Ds are a diverse, very >> anarchic/autonomous crowd in terms of perspectives). Only until recently, >> many people were not permitted to use an artificial pancreas unless the >> management of their type 1 diabetes was at a state that it was considered >> the medicine or tool of second to last resort. With advances in technology, >> form factors, and machine learning (to my own surprise AI does sometimes >> save lives, though it has killed us too), and how those developments have >> interacted with major policy changes (Affordable Care Act) and >> pricing/economics, the model of care has changed to one of choice, eg, use >> the tech that works best for you. >> >> Our community continues to very hotly debate the use of language. For >> example, a lot of us are trained by medical professionals from a very early >> age to use person-first language. This is partly because studies indicate >> that young children thrive better with T1D when their personhood is >> centered (happy to provide readings about this upon request). We are >> also, some of us, subjected to harassment about our assistive technology. >> For example, I lost my high school education to bullying, violence against >> my artificial organ (having it ripped out), and being called similar terms >> as cyborg. Not all of us, thankfully, have had those experiences, but we >> are statistically or systematically excluded from educational institutions >> (linked readings are below). While a fair number of us do refer to >> ourselves by a range of terms, as you mentioned, it is not appropriate to >> refer to our demographic that way or any individual member of our >> community. These are our organs, we do not have the privilege to wear them >> on the inside anymore because the internal ones "died" (they still work for >> other things such as digestion but some of us say our pancreas is dead). >> >> I really appreciate you and this note. I've not really had a critical >> mass of T1Ds in any space I've had to survive. I'd imagine I'm not the only >> one here, but not sure what their preferences are. Either way, it really >> takes allies and a community speaking up and working with us to make sure >> we can exist everywhere, in any space, and that our lives are equal in >> economic opportunity and dignity. >> >> Article about school exclusion: >> https://www.nytimes.com/2015/10/27/health/many-schools-failing-on-diabetes-care.html >> >> Department of Justice on the exclusion of Type 1 diabetics in school: >> https://www.justice.gov/archives/opa/blog/protecting-rights-students-diabetes >> >> Here is article about ableist language, though we could perhaps benefit >> from creating comprehensive HCI Guidelines, I defer to the experts in the >> crowd on that: >> https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html >> >> Thank you, Sara >> >> >> >> >> >> On Wed, Mar 31, 2021 at 11:56 AM Franchesca Spektor < >> fspektor at andrew.cmu.edu> wrote: >> >>> Sara, thank you for sharing this important perspective. >>> >>> I apologize that I did not use the term ?cyborg? with the care that it >>> necessitates when introducing readings that take up controversial language. >>> To respond to your message, I did some research on the ways ?cyborg? has >>> been used to describe people with disabilities. As you mentioned, the term >>> has been used to reduce people with disabilities into the ways they are >>> enabled by technology. These reductions, along with the term?s propensity >>> in science fiction, feed stereotypes that technology may ?fix? disability >>> and that people with disabilities are subhuman, in particular, lacking >>> warmth and human complexity. >>> >>> For others, like me, who could use more education on the topic, here are >>> some resources I found that nuance the potential harms and limitations of >>> reclaiming cyborg terminology. Importantly, this discussion is complex and >>> ongoing and some disabled activists have made clear that cyborg is not a >>> term nondisabled people should use in reference to people with disabilities. >>> >>> - Cyborgs, Cripples and iCrip: Reflections on the Contribution of >>> Haraway to Disability Studies >>> by Donna >>> Reeve talks about why the cyborg figure hasn't been more utilized in >>> disability studies. >>> - The Cyborg and the Crip chapter in Feminist, Queer, Crip >>> >>> by Alison Kafer has this great quote in reaction to Donna Haraway?s Cyborg >>> Manifesto: "The "cyborg" concept thus serves to perpetuate binaries of >>> pure/impure, natural/unnatural, natural/technological; rather than breaking >>> down boundaries, it buttresses them" (109). >>> - The intro of Building the Normal Body: Disability and the >>> Techno-makeover by >>> Emily Smith Beitiks similarly breaks down how usage of "cyborg" has been >>> traditionally ableist, from Haraway to Chris Hables Gray to John >>> Hockenberry. >>> - The Dawn of the 'Tryborg' >>> >>> by Jillian Weise, where she argues only disabled people should call >>> themselves cyborgs since only disabled people depend on integrated >>> technology. >>> >>> These different essays, perspectives, and bits of lineage are so >>> important, and I hope we can continue discussing this nuance as a group. >>> For instance, while Jillian Wiese uses a bionic leg and strongly identifies >>> with the term cyborg, Laura Forlano, who uses an automatic insulin pump for >>> type 1 diabetes does not. In both of their firsthand testimony, these >>> authors detail the labor it requires to make their assistive technology >>> work. I recognize that Zoltan Istvan?s controversial article is a troubling >>> counterpoint to their perspectives, as it is 1) a blatant misunderstanding >>> of the capacity of assistive tech, and 2) an insidious ideology that has >>> influenced policy. In pairing it with Wiese and Forlano, I was hoping to >>> draw out this historical tension between techno-solutionism and disability >>> rights in our Thursday discussion. I apologize for not initially >>> characterizing the harm perpetuated by Zoltan?s ideology -- especially as >>> it concerns the term ?cyborg.? >>> >>> On Mon, Mar 29, 2021 at 4:06 PM Sara Kingsley >>> wrote: >>> >>>> Hi everyone, >>>> >>>> I request that we not refer to everyone living with medical assistive >>>> technology as a "cyborg." For many of us, it is extraordinarily derogatory, >>>> ableist, and those terms have been used by non-disabled people to harass >>>> and commit acts of violence against disabled people. I also ask that we >>>> consider reading about the history of diabetes technology, the broader >>>> community whose lives depend on it before engaging in a discussion of type >>>> 1 diabetes. >>>> >>>> Thank you, Sara >>>> >>>> >>>> >>>> >>>> >>>> On Mon, Mar 29, 2021 at 6:33 PM Franchesca Spektor < >>>> fspektor at andrew.cmu.edu> wrote: >>>> >>>>> Hi everyone, >>>>> >>>>> For this week's reading, we'll explore the cyborg as the supposed >>>>> "pinnacle" of assistive technology. Can cyborg technology eliminate >>>>> disability? Who can afford to become a cyborg? How do these questions come >>>>> to influence products and policy? >>>>> >>>>> These first two essays discuss the frictions of cyborg embodiment, >>>>> from the lived experience of disability: >>>>> >>>>> - "Common Cyborg" by Jillian >>>>> Weise, a poet, performance artist, and activist. (I've shared this essay >>>>> before but I just love it so much). >>>>> - "The Danger of Intimate Algorithms" by Laura Forlano, a scholar >>>>> and design researcher. >>>>> >>>>> If you have time for it, this last essay is a short Vice article from >>>>> several years ago, which argues that the US should invest into exoskeletons >>>>> rather than accessible environments. >>>>> >>>>> - "In the Transhumanist Age, We Should be Repairing Disabilities, >>>>> Not Sidewalks" >>>>> >>>>> by Zoltan Istvan, an attempted politician and president of the >>>>> Transhumanist Party. >>>>> >>>>> I'm really looking forward to our discussion and hearing everyone's >>>>> thoughts! >>>>> >>>>> *As always, join us at Accessibility Lunch on Thursday, April 1st at >>>>> 1:30 PM EST here. *To access the meeting, please use this Zoom >>>>> conference link: >>>>> https://cmu.zoom.us/j/95170225799?pwd=UkhZWmwwUkp6M3BMR1dsM0taNjNnZz09 >>>>> >>>>> Thanks so much, and see y'all soon ~ >>>>> >>>>> - Franky >>>>> >>>>> >>>>> _______________________________________________ >>>>> Accessibility-lunch mailing list >>>>> Accessibility-lunch at lists.andrew.cmu.edu >>>>> https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch >>>>> >>>> >>>> >>>> -- >>>> *Sara Kingsley* >>>> PhD student, Human-Computer Interaction Institute >>>> School of Computer Science >>>> Carnegie Mellon University >>>> Pittsburgh, PA, USA >>>> website: www.sarakingsley.info >>>> Pronouns: she/her >>>> Create Safe Spaces for Students, Denounce Ableist Language: >>>> https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html >>>> >>>> *want to chat about research, projects or coursework?* >>>> please feel free to schedule time to meet with me at this link, thank >>>> you: https://calendly.com/sarakingsley/sara-schedule >>>> >>>> >>>> >> >> -- >> *Sara Kingsley* >> PhD student, Human-Computer Interaction Institute >> School of Computer Science >> Carnegie Mellon University >> Pittsburgh, PA, USA >> website: www.sarakingsley.info >> Pronouns: she/her >> >> *want to chat about research, projects or coursework?* >> please feel free to schedule time to meet with me at this link, thank >> you: https://calendly.com/sarakingsley/sara-schedule >> >> >> > > -- > *Sara Kingsley* > PhD student, Human-Computer Interaction Institute > School of Computer Science > Carnegie Mellon University > Pittsburgh, PA, USA > website: www.sarakingsley.info > Pronouns: she/her > > *want to chat about research, projects or coursework?* > please feel free to schedule time to meet with me at this link, thank you: > https://calendly.com/sarakingsley/sara-schedule > > > _______________________________________________ > Accessibility-lunch mailing list > Accessibility-lunch at lists.andrew.cmu.edu > https://lists.andrew.cmu.edu/mailman/listinfo/accessibility-lunch > -------------- next part -------------- An HTML attachment was scrubbed... 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